The Awkwardness of Speaking Out

“If I Fall, If I Die.” There are a few moments along my journey that make me smile… call them inside jokes, or my twisted sense of humour. Occasionally they come up and I will sometimes laugh, or try to explain the reason for my smile… but usually, it’s met with a stare, a nervous chuckle, or it’s simply ignored, obviously making the people around me uncomfortable with my casual approach to the topic.

One of the stories that I most often tell is the story of the day that my husband was faced with going into my work to talk to my manager about my absence… the reason that I would be spending the next couple of days in the psych ward. I had just attempted to jump off of Inglis Falls in a suicide attempt. Since I am an avid reader and my job just happened to be working in a book store, my husband was also trying to find books to keep me amused in the hospital. When one of the other store associates tried to help, she suggested a brand new book – the title ironically, “If I Fall, If I Die” (Michael Christie). It wasn’t until nearly two months later, when I began this blog and shared what had happened that she found out why the title was vehemently rejected by the store manager – at the time, she only knew that I was unwell and would be missing work. When she eventually told me the story, I immediately found the humour in it, laughing quite loudly at the entire scenario… of all of the books to suggest!

To this day, I find that story funny. A touch of humour to add to an otherwise horrific time in my life, a time when I had been determined to die by my own hand. But it still makes people uncomfortable… even today, more than three years after the fact.

But it isn’t just the story that makes people fidget in their seats and look away. It’s the topic in general… the disconnect that people are faced with when an otherwise ‘normal’ appearing person, opens up and reveals a story, a fact, or a joke about their struggles. It’s a topic that has yet to be normalised.

It’s a disconnect that even I, myself can feel.

When I wake up each morning I look in the mirror… I judge my appearance harshly – searching for the good girl… the normal one. I don’t see the manic or the depressive. I don’t see the girl who has tried to kill herself or that has experienced hallucinations and blackouts and a darkness that simply cannot be described.

When I meet with a friend, or share a story with an acquaintance, I can’t always associate the things that I describe and feel and do, with the person that I am.

I can talk about suicide. I can share my story and give an inside look to what I was thinking, or how it felt. But it feels worlds away… unreal. How can I share that last week I was suicidal, and today, speak with eloquence on the issue? How can I reach out for help and describe the darkness, the unusual behaviour, the depth of everything wrong… how can I be so aware, and yet so out of control? How can I flip between put together and on top of things… able to converse and join discussions and speak out for mental health, only to fall into a fog – a pit of heaviness that leaves me spinning so fast that I no longer know who I am or more importantly, how to come back?

So when I look in that mirror each day… I know. I know the awkward silence that ensues when I openly speak out about mental illness, or bipolar disorder, or borderline personality disorder, or suicide, or hallucinations, or simply confusion. I know that it is hard to see that this is not only real… but it is terrifying and it makes no sense. I know that the humour I find, it is found because I can’t associate these things myself… and I know that from an outside perspective, it’s nearly impossible to understand.

I know that attempting to normalise mental illness is a long shot, with each case so unique, and each person’s experiences so vastly different, and yet somehow eerily similar. I know that when I speak about suicide, people will shift uncomfortably, or their eyes will flit away, looking for something else to focus on.

I know that people will listen, and they will read, and they will see the experiences that I share. I know that they will at times make absolutely no sense at all, and the disconnect will feel so great to what they have experienced in their time with me… but I also know it will in some way resonate. It will spark a recognition or maybe a curiosity. It might cause doubt to flare up, and silent arguments to form… it might cause courage to speak about your own internal struggles, or it might simply be an encouragement that you’re not alone.

Whatever it sparks… engage it, learn about it, breathe it in and let it out.

Forget the awkwardness that ensues… live in the discomfort of asking questions and accepting answers. Talk, share, and listen.

Every person has a story… and even those that might seem invisible… strange… hard to understand… they are valuable.

If we want to end the stigma surrounding mental health… if we want to encourage people to get help and to speak about their struggles, we need to embrace the humour. We need to share the stories. We need to ‘like’ a post, or spread the word, or simply just be there for a friend. We need to see beyond the outer shell that they allow the world to see… we need to embrace each other as we are… silent pain, fear, and embarrassment; hurting, anger, and successes.

Let’s fight the chasm, let’s build a bridge between normal… and ill.

** If I Fall, If I Die by Michael Christie, is a fiction novel about a mother and son, and their relationship - it is NOT a novel about suicide.

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Suicide - A Part of My Vocabulary

“Borderline individuals are the psychological equivalent of third-degree-burn patients. They simply have, so to speak, no emotional skin. Even the slightest touch or movement can create intense suffering.”

--- Marsha Linehan

This is perhaps the most well-known quote about people who are diagnosed with Borderline Personality Disorder; and for me, the truth of it hits me like a bag of bricks every single time that I read it.

When I was first diagnosed with Borderline Personality Disorder (BPD), I challenged it a little bit, unwilling to accept it as a diagnosis until I did all of the research surrounding this condition. What I researched scared me… but what I realised while researching scared me even more.

I do in fact have BPD. I no longer question this, and through a series of therapy groups and individual counseling, along with constant research, and monitoring of my own behaviours, I can honestly say that I am slowly starting to see a diminishment of the outward symptoms.

Unfortunately though, as a person who struggles with BPD, my brain was rewired at a young age, and as a result these intense emotions, while more easily managed for the most part, will always exist in the extreme. While I may appear to be solid and strong and confident on the outside, it could feel internally like I am being tortured; the pain excruciating and all consuming.

This past week I had a breakdown – the first serious one in quite some time. And while it was reflective of a host of issues that I struggle with, the BPD and the intensity of emotion I experienced almost hit a psychosis of sorts, with emotions so extreme that I wanted to die both during and after the breakdown. Literally.

Over the past week, I have struggled in depth with suicidal thoughts and ideation. I have made plans and I have called friends. I have texted my feelings, and I have hidden away in my bedroom. I have spoken and specifically checked in with my support team because I know that in a second of extreme pain, reason disappears and all that I have left is this need to end my life.

I wanted to share some statistics, however doing a quick search led me to too many different sets of numbers. So instead I will share what I do know from my own personal life, and conversations that I have had with friends, family, and professionals over the last several years:

-          BPD individuals are often labelled as difficult, sometimes even refused treatment due to the extremes that we experience. Early on in my diagnosis, I was turned away from the emergency room when I was having suicidal thoughts. A time when I should have been treated with compassion was turned to guilt and shame when I showed up, completely distraught and thinking that I was making a good choice. Thankfully that was the only time, and thankfully I had a family, and enough of a basic support system to carry me through, but the stigma of that visit, where I was treated poorly, has stuck with me.

-          BPD individuals have an extremely high rate of suicide attempts AND completion. This is known, and for me the suicidal ideation can click into place in a moment’s notice. It is as though life twists, changing your perception, your logic. Sound reason simply does not exist… nothing does except for ending your pain. You are not the same person that you were previously - even just five minute before the trigger hit.

-          BPD is the elephant in the medical community’s room. When I found a new family doctor, the first thing that he told me was that he knew very little about mental illness and the medications used in its treatment – specifically the treatment of BPD.

-          BPD can be treated through therapy, and while the feelings may not disappear, they can be managed.

-          BPD is terrifying for family and friends who are close to you. I have threatened suicide. I have attempted suicide. I have left the house with nowhere to go, no money in my pockets, and once in the middle of winter, with no shoes on my feet. I have experienced emotions come from out of nowhere to verbally attack friends and family, and I have terrified my kids with worry over whether or not I would be coming home. I have 'split' apart from the put together wife, mother, and individual with clear thoughts and reasonable thinking; to become a raging woman, with no sense of time, logic, or space - intent on destroying myself, and convinced beyond a doubt that it is the best decision that I could possibly make. 

For the most part – I’m pretty open about my struggles. I want to encourage anyone reading this to ask me any questions that they might have, and I will gladly answer you to the best of my ability - asking questions, talking, and being open are the only way to end the stigma attached to mental illness and specifically BPD. But I want to ask you a question as well… something that came up in a recent conversation with a friend.

     Would you get me the help I needed if I reached out to you?

     What if I didn’t reach out, but for some reason I was acting abnormally?

     What if I specifically threatened to harm myself?

     What if it was your child? Your parent? Your spouse?

     Would you even know who to call or what to do?

Many years ago, I was struggling with the thoughts of being mentally unstable. The only thing that I knew for sure was that I could handle it… I wasn’t one of those people who struggled with mental illness. Outside of my own fear and shame, my husband, friends, our Pastor… nobody knew exactly what to do when I fell down this rabbit hole. Questions floated through the air – do I call the police? Do I insist that she speaks to someone? Do I just sit and watch her self-destruct?

The one answer I can give… it is not always your responsibility to keep me safe; but I sure do appreciate it when you do.

Two years ago, I remember being incredibly angry when my counselor told my husband to call the police. I was fuming when I was first brought in to the emergency room and admitted… I wasn’t sick. I hated the hospital. I was hurting and in pain. But had I not been forcibly taken in – I would have harmed myself, possibly for the last time.

That’s how I know the answer to my own questions. That’s how I know that I will help you every single time… whether you choose to love me for it or hate me. Life. Suicide is the one mistake that cannot be undone, and I can write this today because I was stopped from killing myself. I was found following an overdose. I was grabbed and pulled back from jumping at the last second. I was dragged to the hospital on multiple occasions because I was sick… I was not thinking clearly… I was unable to make the choices to help myself, and I know that I would have made the choices that would have harmed myself.

Today I still struggle with BPD. I still struggle with severe depressive episodes as part of the bipolar disorder. Suicide is not a foreign word in my vocabulary and I want to give it to you as well.

I want to say it loud and clear. Suicide. I want to encourage you to talk about it… to face the question of what would you do if a friend presented with suicidal ideation or warning signs. What if it was you… or your spouse or your child or your parent or your friend? I want to encourage you to ask each other – ask when you’re well, and know what to look for within a friend who struggles… ask those questions now, listen to their answers – develop a plan in case you are ever presented with this serious crisis, and if needed – don’t ever be afraid to call for help. 

* I want to add on that I in no way hold anyone accountable for the choices that I make when I am in an unstable state of mind. This post's intention was merely to open up the conversation surrounding such a sensitive topic, that is often whispered about in corners, or behind closed doors. Shame and stigma will not end if we don't talk about it, and I encourage you to leave a comment, share a story, or simply speak to a friend about this important topic. 

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The Days After, The Day After

Lost. A raft in the sea… drifting aimlessly while ships surround me; each one busy along it’s course… trying to reach their destinations.

It’s impossible to describe what these days feel like.

Last Saturday, I experienced a severe mental health breakdown. I did not die and I did not end up in the hospital. But I did fall backwards to a point I’ve never been before, experiencing insanity to a new degree – confusion, chaos, and fear enveloping me.

Over the course of three days, I lived in a different world… I was by all accounts, a different person. By the end of the third day, I was not only afraid of both what I had done, but also of what was to come. I was unsure of who I was, where I was, or even at times when I was.

During the crisis I had people watching out for me. Friends reaching out to me – and to their own support system for advice on what to do. Co-workers of my husbands, passing him updates when they saw me. And my husband himself… taking necessary steps, and with encouragement and support for himself, when things got bad, calling the police to find me.

Thankfully, things turned out okay.

By Monday night I was hitching a ride with a Police Officer back to my house… back to a semi-conscious state of mind and able to think just a little bit clearer. Thankfully this Officer was amazing; and I can honestly say that without his assistance, accompanied by his respectful and empathetic approach to my tricky situation, there is an incredibly strong chance that things would have ended much differently.

On Tuesday I started to come back to reality… to see the damage and the aftermath of the storm I had caused. I spent the day picking up the pieces and trying to understand what had happened, exactly how I had fallen again.

Over the course of three days I unraveled completely.

By Thursday I was back at work… back in public. Smiling. Happy. Even a little bit more energized than before my break. I looked overall good; although perhaps a little tired. To look at me, you never would have guessed that the previous evening my mind was still foggy enough that I refused to drive my car, afraid that I wasn't able to adequately assess my surroundings.

Today. Friday. I am not good.

Today, I realised that it’s okay to not be okay still.

What I experienced during my three days of madness, was both an incredible breakdown and a massive breakthrough. It was scary and it was frustrating, and it was also traumatic.

On Saturday the puzzle I had been working to build was thrown to the ground in an earth-shattering quake… the pieces scattered, some chunks together, but all of them so far apart that nothing made sense.

By Tuesday, when my senses returned and I saw the mess that had been created, I wanted to fix it. I started to gather the puzzle pieces and quickly put them back together. Some of them were broken, bent, taped, and glued… the damage caused by my breakdown significant. In frustration I began to jam the pieces in that wouldn’t fit. I needed to put the puzzle back to exactly where it had been before this had all happened… I wanted to be able to add more unfinished pieces to the picture; to look forward and pretend that this had never happened.

After all, I was okay.

I woke up in the mornings. I looked perfectly normal. I showered, I was functional, and my autopilot functions were still intact. But despite the fact that things were ‘over’ and it was time to move on to the next leg of my journey… I began to feel worse.

Today I realized that I am not the same.

Mental health breakdowns can change you. For me, I began to understand this again, from an experienced point of view as I felt the beginnings of a panic attack rise at just the idea of going to the grocery store. I noticed the change through my general fatigue, nauseated stomach, and lack of general patience. I feel it in the fear, the haze that refuses to fully lift, and the confusion if things get too loud, too noisy, or just generally too much around me.

I admit, I don’t like this feeling. I don’t like feeling ‘sick’ after the breakdown is over; and I don’t like that I am the only one who has any idea that I am still struggling so much. In some ways, I wish I had a sign on my head announcing it… letting the world know that I’m sick… that I’m not just hiding away in my house for no reason. And in some ways, I love that it’s invisible because autopilot still works to an extent, and maybe if I just push myself a little harder... everyone will believe that I'm really just normal.

These are the days after, the day after.

Learning to heal. To re-enter the world. To know that it’s okay that I don’t look sick, but I am sick at this point. Learning to respond correctly again… to talk… to feel connected to the world, and not lost and isolated, and alone; despite the people surrounding me.

These are the days where it is important to talk. To let people know that I am unwell, not for pity or for manipulation, or to seek affection... but because it can't always be seen. These are the days to seek advice and counsel, and to answer messages from concerned friends and family. To make the effort in self-care. To not push too hard.

These are the days where I want the world to know, that I’m actually worse than when I was ‘in’ the breakdown. The days after, the weeks after… sometimes even the months that follow, when work is being done, new coping mechanisms learned, when life looks normal – but your head is still a mess.

These are the days when a simple text from a friend, or even acquaintance can change the course of the day.

This week I had a person that I would consider a friend message me after I said I had been feeling rough. I hadn’t gone into detail on Tuesday morning when we were talking… and although we are not close, and we haven’t known each other long; this friend checked in later on. A message to see how I was… to encourage me for the next day. It meant more to me than I could ever explain that she knew. That she somehow got it that the day after was just as hard… that it wasn’t simply back to normal.

I want to end this on a positive note. I want to say that I know life will get better and easier from here on out… and I know, logically that it will. But I also know it will be hard. Being in this position is not easy – for me, or for those around me.

I have work to do. But I also have rest I need to take. I need to let the dust settle. I need to find the missing puzzle pieces… the ones that might have slipped under the rug, or been swept across the room. I need to heal my mind, the same way that someone sick with a physical illness needs to heal their body.

These are the invisible days of the illness. These are the days that honesty matters.

End the stigma surrounding mental illness. Talk about it. Reach out. Don't forget friends, family, or acquaintances in the days following a breakdown.

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The Day After

My time over the last decade has felt like a non-stop effort to put together a giant puzzle made with millions of pieces. Some pieces seeming like they should fit where I want to put them, and yet never quite settling, the image it reveals skewed - off somehow.

Working through it I untangle the mess of pieces and try again, the puzzle finally coming together – the image beautiful and clear.

As life grows and moves around me, the ground shifts and I watch as the pieces jiggle loose. But I’m there to catch them, shifting them gently back into place before they can slide too far out of their proper place.

Suddenly an earthquake hits… an event of such a strong magnitude that I can’t even react before the table is thrown violently and the pieces are scattered around the room, chunks of a picture that I can’t even remember. Desperately I search around me, looking for fragments… but it’s confusing and the room becomes dark, ad although I know that the puzzle still exists… I can’t find it anywhere. I don’t know who or what I am. I can’t decipher the patch of puzzle that I put together two decades ago, from the one that I most recently began to work on. It’s disconnected, jumbled, and senseless.

I’m Alice, thrown into wonderland. The lights are bright, but the world is hazy. Everything is nonsense, and nothing feels ‘right’.

Slowly the lights come back on and I grab a section of the puzzle. I throw it onto the table haphazardly and cling to that tiny portion of a picture, knowing that it is right, and it is real.

One by one I gather more of the pieces, the sections still scattered, loose pieces here, there, and everywhere.

As the collection grows on the table I can now see more of the picture, but once again it is jaded, messy, and skewed.

I want to put it all together, go back to where I was… just move forward one more step and forget about what happened..

But I can’t. As I try to put two small sections together, I notice that the corner of one piece is chipped, and another is bent. In my haste to try and understand the collapse, I have trampled pieces… sometimes entire sections becoming broken.

As my awareness builds I can see the damage. Things that I have done to change the picture that cannot be undone… they might be healed, mended, glued, taped, or fixed… but they will never be the same.

That thought alone sends a wave of shock down my spine and I can feel myself shaking, the entire puzzle table threatening to spill again… the thought of repairing what was broken overwhelming.

This is the hardest part of a mental breakdown.

The day after.

It's Today.

It's like starting from scratch while the world continues as though nothing happened... because to them, it didn't. Not in the same way, or the same form. They watched the earthquake as it hit... as though from a theatre, me an actor - causing emotions to rise and swell, fear and anxiety to take hold as they watch the scene play out, not knowing what I will do, or if I will even find the light to go on. Pieces flew from the stage, hitting the audience as they landed... effecting them in a ripple effect. The brokenness extending, damaging beyond my reach. I've fallen behind... lost time... lost days, and hours (and in the past, even weeks). I feel out of place, alone, isolated... lost in a world of time and difference and choices.

I know I will rebuild... I know I will return to where I was. I know that I will have to change some habits, build new ones, re-learn myself. I will have to apologize, and I will have to accept. I will have to make choices. But for now... it's quiet. It's understanding the destruction, the triggers, the path. It's becoming myself again... simply finding the pieces and not worrying about putting them all back together today. It's nothing, and it's everything. Once again, I'm no longer the same and I will have to relearn the new path that I have to take to recover.

This is where I'm at.

This is the journey. 

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All Shades of Gray

I don’t know where to begin.

I’ve been thinking about returning to writing (and specifically blogging) again for a while. But while I know my topic, and I know the words that are written in my heart; it is difficult to begin again… to write with clarity and focus, accuracy and effectiveness.

My first instinct when I think about coming back to this page and writing, is to do one of two things; either share my success – how far I’ve come and how well I am doing, or to share my woes – to rant, rave, and complain about why things are still difficult… what is up and what is down. Black and white. Good or bad. Mental health or mental illness.

I think the reason I have taken such a long break this time is simple though. Over the last several months I have been focusing on my recovery and specifically on healing. I have been on a journey throughout most of my life, and I am finally at a place where I can finally sit back and see exactly how far I’ve come, and how far I still have to go. I can see the milestones, and the setbacks. I can see the hurt and the pain that still exists in my heart and my mind, and I can also share joy and peace, and stories of growth and commitment.

One experience, although sometimes more good than bad, or bad than good; no longer has the power to shift my thinking to recovery is going good or recovery is going bad.

During recent months I have been faced with the same decisions that I have faced over and over throughout my life. I have dealt with trauma and I have dealt with joy. I have lived with the consequences of my decisions and I have battled blame for decisions that were not mine. I have survived severe back pain, walking away from a job, financial insecurity, marital ups and downs, significant weight gain due to med changes, and general, everyday life.

This year has been one of my toughest yet… facing things that I didn’t believe would happen to me, living through mental and physical exhaustion, and revisiting my past. I have journeyed to the depths of my soul and I have sat and cried, yelled, argued, and thanked God for the trials and the blessings in my life. In marriage, I have recovered from infidelity and faced demons that have been haunting our relationship for decades. I have taken on a new, more confident role, and I have faced my own ability to make a decision that is right for myself and my children.

Each day I wake up and I find that I am learning something new… discovering a positive or a negative about myself or about others. I have learned to watch and listen more than I talk. I have learned to look around and maintain awareness of others and the world around me. I have ventured out of my comfort zone... in personal and in business fronts. I have formed new, valid, and strong opinions about life, love, politics, and the way that I want to live my life.

I still experience ups and downs. I still have days where I want to shout out how well I am doing with my mental health because I have learned one new thing, or discovered that I am now in more control than ever over specific habits. I still have days where I become quiet, desperate, and suicidal; days where I want to bury my head and pretend I don’t exist, or to stay in bed all day long, every day because the world is too much and my brain feels like it will implode if I have to talk to anyone.

As I head into a new year I both cringe and jump for joy. I’m terrified of what this year will bring… more change, more ups, more downs, and more general chaos… a world of unknowns. But I’m excited as well… because, well, my mental health is that… it’s health. It’s a feeling of normalcy despite the diagnosis and the work to maintain it. It is the conversations, the openness, and the candid life that I have learned to live. It is honesty, decision making, and continuous learning and growth. It is an opportunity to thrive in the good times and do more than survive the tough times. 

This is 2018. Mental health is with me... and while my diagnosis is still there, it no longer controls me. Life is moving forward, and this will be the year to move along with it. Big changes, little changes... it doesn't matter as long as I continue to grow, learn, and change... embracing the differences and the similarities... thinking in black and in white... and in all shades of gray. 

Happy New Year!

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(Hypo) Mania and Mental Health

• It’s five a.m. and I’m sitting on the couch, lamenting the fact that I can’t sleep – although I typically love to sleep in as late as possible… today I’m not tired.
• Later on in the day I listen to myself as I talk to a friend, telling a story and laughing and joking around. I notice the stutter in my speech – the way that my brain is moving faster than my lips can keep up. My words are skipping out of my mouth, fast as they tumble forward almost at a speed too quick for my friend to catch.
• When I’m home alone that afternoon, the house feels big, empty, and hollow. I want to sit and write or read, or even binge watch my latest obsession on Netflix… but I can’t. My brain won’t focus and I can’t sit still. It should be good, it should be getting me out and moving – but instead I sit and debate what I want to do, not sure, not able to stay focused on my own surroundings or even on a simple task such as washing dishes. I bounce around the house instead. I wash two dishes, tidy part of the bathroom counter, sweep the living room (but only by the fireplace… I’ll do the rest in a minute), wash three more glasses, and empty the trash but don’t quite get it out to the garage. I wanted to clean my house – but when I finally get distracted by playing with Christmas decorations – my house is still a mess, rooms partially cleaned, and dishes still in the sink.
• It’s dinner time. The ground beef is sitting partially thawed on the counter – I had dozens of grand ideas for dinner tonight; I was going to make stuffed peppers, or enchiladas, or even homemade burgers. Instead I settle for the easiest thing that I can think of – Sloppy Joe sauce from a can… and I text my husband to bring home buns because I simply didn’t get to the store like I was going to do.
• After we eat and I clean up the kitchen my daughter asks me to watch a show with her. Sitting in the living room I put my feet up, and then I put them down, and then I cross my legs. I watch the show, but I open the laptop up periodically to check out an actor’s history on IMDB or to Google a fact I heard in the show. Between that my phone is in my hands… responding to texts, adding tasks to my to-do list, and Googling how-to’s for my latest project, convinced that it’s going to be great.
• By the time that bed time rolls around, I feel like I should feel tired… but I don’t. My body is surprisingly achy and I feel shifty and flighty and like I can’t sit still. I lay down on my yoga mat and try some deep breathing and simple stretching. Eventually I head to bed, sleeping partially through the night – jerking wide awake every so often, each time taking longer to fall back asleep… but I’m never fully asleep… always in that place between wide awake and dreaming – the place where you hear the world around you, but you’re somewhat out of it.

This could be the beginning of a (hypo)manic episode... combined with constant anxiety, irritability, visions of grandeur/success/invincibility, and a belief that I’m not just okay… I’m great.

But in truth I’m not… and even more than living with these swings (but in my mood but in my personality)… I hate admitting that I do. I hate the idea that I’m not okay all of the time... or that mental health isn’t as easy as popping the pills that the doctor ordered and staying on top of counselling. I hate that I can’t simply eat healthy and exercise to put my body and brain back in order and correct my thinking. Most of all, I hate that I can’t simply have an anxious, tense, or quick thinking day without wondering if this is it… is this the beginning of the end of stability? Or am I just happy and having a fidgety day?

Was today really a sign that I’m going down (or up) the rabbit hole again, or was this just a natural cycle for a person, still within the reasonable level… graphed on chart to be worrisome but not yet severe?

Am I going to end up in the hospital again? Switching meds? What if there are worse side effects? Will I crash? Will I become suicidal? What if I become paranoid or delusional? What if I start hallucinating again? Does anyone else notice? Maybe I’m the only one that can see it coming… can I fake it? Should I just carry on and pretend that I'm fine? What if I just watch it carefully? I can slow my speech down, I can act ‘normal’. Maybe I’ll shift back down to normal tomorrow anyways… yeah… tomorrow. And if not… tomorrow I’ll call the doctor… just to, you know… make sure… but I’m fine… I know I’m fine… I feel… I feel good… like really good… this can’t be bad... in fact it’s great. I don’t need a doctor. I’m fine. Do I really even have a 'disorder'?

And that’s how easy it is. How fast it is for someone to say ‘I’m fine’… how quickly my brain can go from logical and concerned and on top of my health… to trying to convince myself and everyone around me that I’m okay, and that nothing is wrong.

I wish I could say that this wasn’t a real example that I used. Unfortunately it is, and unfortunately I know my own cycles all too well. Thankfully, this isn’t from today… but the truth is, I have noticed that I am talking a little faster, and I’m feeling a little more awake than usual – despite the shorter day and lack of daylight. I’m not in the extreme and I am continuing the routine I’ve put in place. I know better now… I know not to stray and I know that I need to be kind and gentle and yet firm to keep myself in check. I know that if one more symptom shows I need to get to a doctor as soon as possible, I also know that I need to call anyways to check in and adjust some meds – just in case… the sooner the better.

This is why my mental health is my priority… my ups and my downs could literally kill me. This disease that supposedly has no cure, simply management; it strikes at any time. Winter, summer, spring, or fall, with little to no warning, and always trying to consume me in one extreme or another.

But I refuse to let it destroy me. I have suffered enough – and although I may live with constant worry, stress, and check-ins, I am winning the fight. I am becoming more aware with each and every day, I am sharing my struggles so that others can step in and help when I need it, and so that in turn, I might also help others who struggle.

For tonight though… my routine is calling and so off to bed I go, knowing that as long as I’m not alone in this fight, I will not just survive, but I will thrive. 

** I just want to clarify that I am not at this time manic (although I am as always, watching for any symptoms that indicate that my mood could destabilize).

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Beautifully Broken

I used to believe that I was defective, incapable of obtaining and keeping the same things that supposedly normal people liked to flaunt as though that was the definition of success. By all measurements to western society… I was a failure… broken marriage, broken mind, struggling finances, lack of motivation at times, and a death wish.

Broken.

It’s such a powerful word with a strong sense of permanence. If something is broken, it might get fixed, but it will never be good, whole, or worthy of feeling new; and that was how I felt. Even when life began to make sense again, when God provided, my marriage flourished, our kids grew strong and healthy, and my mind became more stable; I kept this image of broken in my head – I might be glued together for now, but how long would that glue hold strong?

As a result of this fear in me that the fix was only temporary, I learned to hang on to things that mattered to me. I learned to manipulate situations and I learned to fight dirty. I became the angry, bitter woman that lived inside my heart, always fearing the worst and always waiting for disaster to strike. I acted on impulses and emotions, on feelings of justified anger and deserved pain. I loved my family, but anybody else who threatened to break any piece of my already broken life apart was destroyed in my rage… relationships trampled on, people pushed away and broken down, things left behind and ruined.

Over the years, life continued on. Cycles repeated. Treatment ensued. Problems were either worked on, or set aside to be worked on at an appropriate time. Sometimes I fell down along the pathway to recovery, the puzzle that I had been working to piece together for my life shattering as I fell backwards. It was a fragile thing. This thought, this stubborn belief that develops in life that convinced me that broken is bad.

I didn’t realise that the worst was yet to come.

In just over a month it will be three years since I hit a major turning point in my life. November 6, 2014 I tried to take my own life, and in reality, I should have died that day. On that cold and rainy Thursday morning, I felt the most broken that I ever had, and while it was neither my first nor my last suicidal day, it was the day that I truly began to look into the mirror and see the brokenness displayed.

I was broken.

Today, I woke up after a hard and messy day yesterday that bled into a hard and messy morning this morning, and the only word that I could think of was broken. I felt that familiar pang – the reminder that no matter how much work I do, or how far up the path I go, I will always slide backwards, the puzzle will never be solved… I will never be whole.

I felt that familiar nagging, the one that’s always in the back of my head, the one that’s asking me to let go of the hard work and the recovery and make poor choices, the one that wants me to sabotage not only myself, but those who try to intervene. I felt it and I began to embrace it.

And then I looked at the jigsaw puzzle my mom gave me for my birthday last week. I looked at the bottle of puzzle glue sitting on top of the box and I envisioned my spirit, mind, and body as a puzzle – pieces scattered everyone. I pictured myself putting the pieces carefully together and building a stronger me – one that won’t bend or break or fall, loading the glue on in layers to prevent cracking or breaking ever again. I pictured my soul as a complete picture, everything in line and making sense… everything normal. And then I framed this puzzle in my head, a beautiful wooden frame with a piece of glass keeping it together. The image worked. It made sense, everything added up and in line.

And then I pictured the future. I saw a new piece coming into my life and wondered where it would go if I already had everything together, clear cut and organised. How could I add new experiences on, new knowledge, work, recovery, new friends, or even life events when I had already completed the puzzle? I couldn’t.

And then in my head, I saw the puzzle fall to the floor, breaking apart and ready to be built again, ready to add in the newly discovered pieces. As the pieces scattered all around me, they suddenly took on new meaning, new life as I put them together on a different angle, took out some of the stuff holding me down, and put in the new pieces that I’ve picked up along the journey. As I did it, a new picture began to emerge... a new vision of whole, complete and normal.

Today I feel broken.

But it isn’t that I feel unworthy, ugly, scarred, or useless. Today I feel broken because today I am learning new things and adding new experiences into my puzzle. I am learning from the past, and l am looking to the future, unsure of what may come, but ready to build and add and discover. New relationships are being forged daily and old relationships being repaired or let go... new life events, new mistakes, new beginnings... new puzzle.

Today, broken is not a permanent feeling – it is not a failing to succeed or hold it all together or to always make the right decisions. Today, broken is my strength. Today, broken is beautiful.

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A Glimpse of the Aftermath

"Goodnight girl," I laugh as I tuck her into bed, kissing the top of her head and trying to avoid the inevitable grab that she gives me, holding my arm, my leg, or any part of my body close to her. Joking around and laughing about how I can't leave her and how I have to stay, to sleep in her bed with her. Prying her arms from around my neck, I drop them to her bed and back away, laughing some more and talking about the outfit that she has laid out on the floor for the next day, hoping that it distracts her before bed. I feel the guilt eating me inside, but I refuse to give in to her playful, passive resistance, knowing that she will be fine and knowing that she will have to learn to trust me again. But still I give her one more kiss, one more hug goodnight.

Just a week ago, I pushed her trust to the limit when my husband and I went out late at night to try and catch the Northern lights on camera, leaving the kids at home with the oldest to put to bed. When I came in after midnight I went to her room and made sure she was tucked in, however I didn't wake her up as I knew that she preferred for me to do. Instead I slipped into bed and fell quickly asleep...  until an hour or so later when I heard my bedroom door open and felt her presence slip just inside the door for a minute while she monitored the room to ensure that I was there, breathing quietly and leaving as quickly as she came, moving back to her bed and turning on her little television and VHS player - popping a favourite Disney movie in to help her sleep.

"Trust me." I tell her regularly.

"Are you alright?" She asks the second that I seem out of sorts - the tears, the quiet, the headaches, the naps... anything out of routine, and she is aware, checking my status, ensuring that I'm not leaving her. 

"I love you." I tell her (and all of my children) daily, sometimes hourly, sometimes more. 

"It's just a cold" I say as I sniffle and wipe my nose, her face etched in worry as she watches me closely and cuddles a little more throughout the day. 

"I promise, I'm okay." I have to say, more than I should... because she doesn't trust me. She doesn't know... she can't be sure. 

"You aren't going to have to go back to the hospital... are you?" She asks quietly, the fear evident in her voice - memories of me being in a locked ward and denying my kids visits, ashamed and unwilling to introduce them to the world that I'm stuck in for the moment.

Out of all four of my children, I see the impact of my decisions the most on my daughter. Although she is 11.5, there are days where she reminds me of a toddler, the way she snuggles and clings to me, insists on sitting just in the same room as me. She doesn't like it when I'm sick, she doesn't like it when I leave, and she is often terrified when I say goodnight. 

I have gone through many episodes in the last 5-8 years to do with my mental health. Throughout my episodes, the one thing that remains consistent is that I never wanted to hurt my kids, and during my decision making process, somewhere along the lines I have often decided that they were better off without me. It is one of the biggest lies of mental illness... the one that warps the truth and forces you to see the burden that you have become, the way that you will hinder or hurt your kids if you remain in their lives, or simply if you remain alive at all. 

Several times I left home over the past five years. Several times I tried to end my life. Several times I simply thought about it. Several times, I didn't know what to do so I just ran, disappeared without a trace. My mind was paranoid, delusional, warped, and at times psychotic, but the safety and the health of my children always seemed to be constant. But that is where the problem lies... when you think you are doing what is best for them, by hurting yourself or disappearing completely from their lives. To the outside it seems hurtful, unimaginable, and selfish - while in your heart and your head, you feel like you are protecting, loving, and helping.

And after it was said and done, after regaining level status and release from a hospital. After realizing the mistakes that I had made and apologizing for leaving. After explaining mental illness - a sickness of the brain to my kids in terms that were age-appropriate and gave them information without too much detail... after all of that, I started to learn about the aftermath. 

I began to learn about the fear that they experienced - the unknown, the whispers that they put together. Eyes and ears are everywhere when you have kids, and while my husband and I have tried to keep them informed to the appropriate level they are at, there are some things that they still find out... that they piece together... that they share between them. When your front lawn is covered in police cars while they search for their mother, it is impossible to hide. When they eventually come to visit you in a place filled with people from all walks of life, experiencing all kinds of mental illness, it is impossible to hide. When memories and fights assault the adults, when tears begin and don't stop, when words are muttered and heard by little ears... they figure it out. They know. They understand. But they can't understand it all. 

And so I tuck my kids into bed each night, and each night I give an extra snuggle when needed. I leave the light on, or do a quick groggy wake up when I come in to assure them I'm home. I let them check me over when I've just got a cold, and I tell them I love them as often as they need me to. 

I show them that I am earning their trust. I talk to them. I build up our relationships. I show them recovery. 

I show them dedication and hard work. I model research, counseling, reading, and talking. I model following a health plan and the doctor's advice. I practice self care, (mostly) healthy eating, the importance of regular exercise, and expressing emotion.

I've seen a glimpse of the aftermath. I know the chaos it causes when a parent decides their children are better off without them.I know the turmoil, the heartache, the mistrust, and the loss of respect. I know the pain, the fear, and the anxiety that comes as a direct result.

I know that when my head starts to shift, that if I don't catch myself, that I might fall again, take a hundred steps back in my recovery - and as a result, theirs. I know it's possible, and I know it's impossible to understand... even those closest to me having a hard time piecing together how I can shift so rapidly, so completely in my thinking. But I know, that I can make a difference now. I can work on myself. I can do whatever is necessary.

And I can fight hard, so that hopefully, with a lot of hard work and support and knowledge, they never have to experience that kind of pain again. 

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Chaos, Emotion, and A Glimpse

Emotions are a tricky thing.

A little over three years ago I felt okay. I was still struggling with a bipolar diagnosis and finding my own unique degree of “normal”… but I felt like overall, I was starting to get things together. Life was busy and I was keeping up – full time job, four busy kids, the entire family moving every direction with activities, and a marriage that needed work but that was dedicated. It wasn’t perfect, but I did feel like I was starting to get a handle on things – that if I worked a little harder, and pushed through the rough times a little stronger, than it would be okay… I would conquer the madness.

Even though I knew it was stressful and a struggle to move, I never would have imagined that just a few short months after moving I would find myself in one of the darkest places that I had ever been – in essence the start of a roller coaster of a recovery journey. The emotions that floated around my head had always been extreme, but as I began to travel a new road, research my illness’s, and take off the many masks that I had always worn; I found that I no longer knew how to handle anything – let alone the emotions that ran rampant through my brain, fluctuating with little warning, sending me down twisting paths that always felt like they were trying to trip me up.

 

Three years ago I posted on Facebook, trying to make my life seem exciting and good – showing off our new home that we were settling into and bragging about the beauty of living in the country; I was trying to make it seem like an adventure that I fully intended to not only participate in, but to enjoy. And yet just yesterday, I found myself curled up in the corner – struggling to breathe as I battled emotions so intense that I felt like I had been propelled right back to the beginning of my journey. As I fought through my emotions and worked through the steps that I have learned to bring myself back to the present I grew overwhelmed – upset, frustrated, and confused – over both how far I have come, and how far I have left to go.

Just yesterday, I found myself wondering if it was worth it… if I would ever be the vision of “normal” that I have spent years aiming to be.

And then I was okay again. My mood bounced back up. I smiled… I cuddled… I played with my kids… I felt hope and motivation. I felt good – even if it was only for a brief few minutes before the chaos resumed inside my head.

And throughout the day I used up my strength – my inner monologues and my conscience fighting amongst itself. I used up my patience and my own understanding – I used up my own pool of excess emotion to propel myself through dinner, through conversation, and through the evening with the family. By the time that bedtime arrived, my head hurt and my brain would not shut down. Things people said – the way that I reacted – the things that I did and felt and said and saw… it all replayed on repeat. My emotions swirled back up and as the exhaustion settled in, I wasn’t sure that I could bother to repeat the steps and the process to calm myself down and think rationally.

And the worst part is – sometimes I question it all.

Nights like tonight, where I can’t sleep and my brain works non-stop, I wonder if it’s worth it to keep moving forward on this spiralling pathway that I’ve chosen. I want healing. I want recovery. I want to be able to say that I did it… I conquered those thoughts… those ideas… those reactions. I want to be able to say that I have no more darkness in me, and that medications and therapy and a lot of work has helped to restore my brain to some semblance of “normal”. I know that tomorrow I will mask it again and I know that I will pretend that I am okay as I work through more of my “stuff”. I will smile and make nice, I will socialise, I will bring up normalcy and stigma, and I will talk about fighting and winning against mental health.

But the truth is; emotions are not easy – and fixing chemical imbalances and learned behaviours and reactions, is more difficult than anyone will ever admit to.

Because the truth is hard to admit.

It is never easy to say that you are struggling and that you feel like a failure.

It is never easy to say “I’m not okay” or “I’m suicidal today”. Stigma is everywhere – in the world, in our friends, in our homes, and in our family. Our loved ones become numb to our pain or our confusion – our constantly heightened sense of emotion and our inability to deal with life in an appropriate way. Compassion fatigue allows those who we trust with our baggage to become desensitised – to possibly say the right things but without meaning, or to simply ignore our struggles and our victories.

And so we return to the places we came from – hiding the truth and masking our journey with quotes and inspirational sayings. We pretend that although it may be tough – that we are fighters and that the worst of the journey is over, just a few small hurdles left to clear.

My emotions are not okay. My own emotions might never be fully okay or one hundred percent manageable.

After years of working on controlling them, on doing recovery work, and on researching therapies that can help me process and see things differently – I can honestly say that some days I feel worse, being aware of and in a position where I am expected to be able to redirect those emotions, and process things in a more acceptable manner.

A little less than three years ago, I tried to jump off of a waterfall and my life was saved by two police officers who pulled me to safety as I let go over the ledge. I was confused and unable to handle my emotional state – I was depressed and while it was an intentional act, I was also unaware of the depth of my own state of mind, and the way that my brain processed things differently. I wish I could say that being in that place, was the worst day that I have experienced.

But the truth is, it wasn’t.

Some days are utterly unbearable and there are many days where taking my life still seems like an appealing option… a better option than living in this constant fear, pain, and chaos.

But then I remember the good days. I remember the small victories that I am the only one who has noticed – the way that I didn’t go to bed one night feeling like there had been a massive war inside my head… or the way that I controlled myself in an overwhelming situation… or the time I set a date for myself to make a decision, and then I let it pass by. There are victories every day. There are reminders and support systems and people who might not ever “get it”, but who are there. There are the days that I force myself to talk about it – the good and the bad – the victories and the struggles, so that other people might not feel alone any more… or so that someone else might see the battle that I face. There are the days where I say I will not give up – and there are the days where I cannot do much more than sit and pretend to be okay. There are days where compassion fatigue and struggles of their own prevent my friends and family from checking in or from being able to help when I ask… and then there are the days where they are there – a touch, a hug, a tea, a friendly “hello”, and I hadn’t even thought that they noticed.

Three years ago I had no idea what I was doing. I was simply trying to survive in the best way that I knew how – with no knowledge, no true support, and no ability to identify what was really going on in my head.

Today – I still feel the same way a lot of the time. But emotions are tricky, the mind

can be a complicated maze to navigate, and recovery is never a straight pathway. So today – while I don’t understand, and while I have chosen to stop trying to navigate my head for a while, I will talk about it. I will share a bit of the chaos – I will share a bit of my life. And sometimes, sharing a small glimpse into someone else’s head, is the very best thing that you can do.

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Two Roads to One Destination

Whispered truths.

Admissions among friends with the clause that nobody can know... or requests that they don't say anything to a certain person or a certain group of people.

Fear of judgement. 

Fear of the unknown. 

Fear of failure. 

I want to say that I am stable on my road to recovery. I want to write about how I embrace myself and all the quirks that come with who I am and the way that I think, act, or feel. I want to say something profound - some truth that will be earth shaking. I want to be solid in my thinking - to say that it is all  a straight pathway as I navigate my journey. 

But I can't. Because I'm not. 

I still have good days and bad days. Lately? It's been manageable and I have seen some major improvements in my thoughts and my behaviors. I have been sorting out my routine and my life, sticking with meds and putting in the work required to live in stability. 

But it doesn't mean that my journey is over or easy at all. In fact - it's almost the opposite. 

The further down the road to recovery that I travel, the more I see from those around me - the expectations that once I'm good - I'm good. An unspoken agreement that I might be able to slip back a step or two, but to completely fall down, is unacceptable. The looks and whispers and judgement that I see and/or hear when I say that I am having a difficult time and when I say that I need to do something different than what is acceptable to my friends or my family.

It comes from everywhere and it isn't deliberate. It simply isn't understood. 

I have a diagnosed mental health condition. My brain might never fire correctly on it's own... it might mean that I will travel a lifetime of medications, counselling, and constant self monitoring. It might mean that I will slip and fall and need help getting back up. It might mean that one day I will not appear to be the person that I appeared to be the day before.

Right now I'm doing somewhat okay... and I truly hope that I remain stable and level and in control. 

But I am also aware of the possibility that I might fall. I am aware of the fact that I might need to take some extra steps to ensure that I keep going on the correct path - even when it causes you to look twice at me.

Sometimes I make decisions based on my mental health - something that I don't usually admit for fear of being misunderstood or of being seen as weak, or excusing behavior. Sometimes I feel close to my breaking point - about to slip and fall, hanging on by a thread because of a fear of doing something that I need to do to maintain stability. 

It's a constant truth. It's a constant secret. 

Recently I made a big decision in my life, that really brought out this fear in me. I gave very few people the real reason that I made the decision that I did - bringing in other factors in my decision and making those the focal points. I avoided the truth... and the truth was that it was something that I needed to maintain my stability. I could feel myself falling down this rabbit hole, spinning wildly and trying to hang on for dear life. But I could feel my grip slipping and in the end I made the decision that I felt was best for me, my health, and for my family. 

But I didn't tell people that. Even those closest to me. I made other excuses and gave other reasons, but I didn't just come out and say that my health required me to make that choice. And it was because of this fear. This hidden feeling of judgement within me. 

Is it real? The judgement, the looks, the lack of understanding?

I can say yes with certainty. It is something that I have discussed at lengths, in conversations with family and friends that have left me vulnerable and afraid, worthless and like a failure. Conversations that have expressed frustration and impatience with me for being the way that I am, and not being able to just do what everyone else does. Conversations that have left me questioning who I am, what I'm capable of, and whether or not the people in my life are better off without me. 

I wish that I could say that I didn't care about the opinions of others or about their judgement and their misunderstanding of me and my situation. I wish that I could say that the looks, the comments, and the hurtful words slid right off me, never sticking, never bothering me. Although I try to let that be true, it isn't always the case.

Thankfully I'm in a place now where I can try and fight that fear. That need to whisper and keep my reasoning quiet. I am in a place where I can speak up and fight for what I need to maintain a stability in my mind. 

But sometimes it still hurts. Sometimes it is still difficult to explain. Sometimes it doesn't even make sense. 

But I can walk away knowing that I am doing all that I need to do to stay sane and to stay level. I can stand tall and firm and know that just because those around me might not understand, it doesn't mean that I am wrong, or weak, or making excuses. 

I can also try and raise awareness. I can stop the whispering and talk in a firm voice. I can say what I need and why I need it. I can show those around me that I am strong and capable despite my illness. I can take care of myself and ignore the fear of being different and of being judged. 

I can stand out. I can stand firm. I can stop the whispers, the lies, and the secrets. I can make having a diagnosis and living my life in a way that works for me, okay. 

Because I am okay. I am fighting, and I am working, and I am changing. My diagnosis does not define me, but it does help me find the pathway that works for me, sometimes, there is more than one way to live, more than one choice that can be made.

Sometimes there are two roads to one destination and while one might look different, or frightening or simply strange; sometimes it is the best path for your journey.  

 

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Labels, Labels, Everywhere

Woman. Mother. Wife.

Bipolar. Borderline. Psychotic. Unstable.

Balanced. Stable. Healthy.

Unhinged. Wired. Manic. Crazy.

Happy. Sad. Up. Down. Chaotic.

Overwhelmed. Exhausted. Scarred. Incapable.

Me.  As I am.

It's amazing how many different words float around in my head on a daily basis - contradicting thoughts, emotions, and definitions. It isn't that I try to label myself. It isn't that I want to label myself. It just is what it is.

The fear wells up in my head on a daily basis - the thought that I'm sick and that I'm not complete - the idea that I'm missing an essential piece of who I am.

I want to define myself - I want to know exactly who I am.

But the problem with that... is that I truly don't know from moment to moment what that will look like or even why I crave it.

But I do.

Maybe it's the thought that I will always be unwell, that I will always have the threat of another breakdown looming over my head. Much like an alcoholic will always be an alcoholic - I will always have Bipolar Disorder, I will always have a history of being unstable. Medications can help to keep me level. Counselling and recovery programs can help me get to the root cause of my problems, they can help me analyse my behavior and show me what I do and why I do it. But as it gets easier to address my issues and even easier to recognize my own faults, triggers, fears, and episodes - it also makes it more constant... giving me an awareness unlike anything I have ever known before.

And I look around me and I see people - everyone with their own label that I can see them trying to overcome and I wonder if I will simply replace one label - one problem - with another.

And I see online - articles about identifying the Borderline in your life - telling spouses, family, and friends of those with the disease about the horrible things that a person with a Borderline personality will do. I see the other side of the argument... pages and articles written by those with Borderline, Bipolar, Depression, Anxiety, PTSD, OCD or any number of Disorders begging those in our lives to understand - to love us anyways... to be patient and kind and loving... we don't want to be this way.

And then I flip through more social media. And I see the meme's... the ones that say that you can change your life - you can be whoever you want to be - you are stronger than anything - only you can make yourself happy - only you can love yourself - only you can define yourself.

And that's the thing - there's truth to all of it. A little bit in each. But it isn't as simple as that either.

I give myself labels every day.... some days I feed off of a word - a diagnosis. Some days I spew that word out, that label with hatred - swearing that I am more than that. Some days I just feel resigned to it. I am this. I am that. I am good. I am bad. I am sick. I am healthy. It is my fault. It isn't my fault. Some days I just wish it was clear.... I wish that labels could be stuck to our foreheads when we wander outside - so everyone could see what we ourselves feel like - so that everyone could see that every person out there has something that they are insecure about - something that they doubt - some way that they see themselves or feel about themselves.

Some days I wish it were like that - but only with positive things.

Photographer. Friend. Child of God.

Strong. Overcomer. Courageous.

Authentic. Honest. Friend.

And I wonder - why can't it be. Why can't we wear our labels proudly? Some days we are not going to feel positive, but maybe - maybe if we remember the positives a little more often, they'll shine through a little stronger - overpower the negative a little bit more. Maybe then our beauty will be the first thing we identify by and the first thing that someone else sees.

Maybe instead of the woman who tried to kill herself and that struggles with Depression and Bipolar and Borderline Personality... I will be the woman who is kind and thoughtful and empathetic and strong and courageous.

Some days I will fail at this. Some days, my own labels will overpower everything else and creep up on me and define me. But on the days where I am able - on the days I can say with pride - "my diagnosis doesn't define me" those days I will shine. Those days I will help erase stigma. Those days I will help another find hope. Those days will strengthen me. Those days will be the ones to propel me to keep going - to continue fighting - to continue talking.

Those are the good days. Those are what I want to define me in the end.

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To Those Who Have Stuck Around

I had always been the odd one out. Periods of isolation, enthusiasm, obsession, and short-lived friendships were normal for me. I thought it was just girl-drama – that nobody was really as close as those best friends that they portray on television. I didn’t realize or understand that my clique-jumping and inability to really get close to someone (without becoming obsessive, envious, or eventually angry) was really the early stages of my Borderline Personality Disorder rearing its head. I also didn’t realize that my hobby-jumping, sports switching, club shifting – followed by periods of doing nothing – were indications of Bipolar Disorder. To me, I was normal - I didn't understand why I wasn't like everyone else.

He’s been with me for seventeen years now. We have survived through the emotional roller-coaster – the turmoil, the ups, the downs, and the chaos; and some days I truly wonder how we made it.

It’s on these days when I sit and think about it, that I don’t really understand it at all. Don’t get me wrong – I love my husband with all of my heart, but I know that I am not an easy person to live with, and some days I am definitely not an easy person to love.

You see, I didn’t just wake up one day at twenty five years old, suddenly psychotic and breaking down – sick of life and unsure, and well, mentally ill. Looking back through work that I am doing, I can see the traits as they developed through my childhood and early adolescence. I can see peaks and valleys, I can look back on the skewed thinking and my alternate view of the world around me, and now that I know better, I can honestly say that that is where it all began. As the years went by and life became busy and hectic and stressful – triggers were found out and I came up and down and to the edge of the cliff mentally, several times before it all became too much, before I was finally unable to handle it myself, and before I finally began to get help.

Sometimes I was mean and angry – I yelled and I pushed my husband (and others I love) away. I didn’t know how to process things and it was the only defense that I knew and that I trusted. Other times, I was energetic and ambitious – my dreams were infinite and I could tackle the world around me… I was obsessive and perfect, my life looked like a happily ever after to those outside our little bubble. And then, then I would fall – depression would engulf me and our happy family was miserable. I would become isolated, disinterested, hateful, and self-loathing. Everything appeared blackened and I dragged my husband and a few select people through my darkened world as I contemplated life – but more often death. As I threatened suicide, ran from my home, slept in my car, placed myself in dangerous situations, and scared the hell out of people that I desperately wished could help me, but who didn’t know what to do.

And yet, they still loved me. They showed me kindness, forgiveness, patience, and overall love. Even on the days where I believed I couldn’t be loved, and that I didn’t deserve any of it – they stayed. They put up boundaries for their own safety. They stayed awake and stopped me from leaving the house. They called the police. They let me sleep on their couch. They talked to me. They didn’t doubt my heightened feelings. They tried everything that they could, and they kept me safe.

I know that some days were harder than others. I know that at times I drove my husband to the brink with worry for me. I know that some days, he (and others) had no idea what to do. I know that on days where I would disappear and they worried for my safety, they did what they had to – they continued on. They cared for the kids. They cared for my husband. They prayed for me. They confronted me. They took my anger and they made decisions in my best interest, sometimes against my own judgement.

I wish I could say that now that I am stable and on the right track, that things were easier. But that would be a lie. Because when the disease is in your head, in the way you think, react, and control situations, you can’t just turn it off. The work that I am doing helps. It has made a dramatic change in me and I can honestly say that I can handle more of my triggers, better than I ever have before.  But there are still days and moments when I know that I am difficult to say the least. I know that there are days when my husband wishes that I were ‘better’, and that I could just ‘stop’, the way that my brain works. I know that there are times when I do or say or fight for something and he wants to blame my mental health, because sometimes that is easier. I know that there are some days when he wishes there was no mental illness to blame. In other relationships, I know that others do not understand and I know that I still hurt others when I isolate myself or react badly to a trigger or situation.

Trust me. I know.

And I’m grateful. I am so very grateful that they try. I am grateful that they don’t give up, and that I don’t scare them away. I am grateful that they worry and that they check in on me. I am grateful that I am even a thought in their day.

And I am grateful to my husband. It isn’t easy to be married to someone with a mental illness, and we have definitely gone through some very rough times in our marriage, but we’re together… we’re struggling through the murky days and coming out to brighter ones… more often, longer lasting, and more vivid than we’ve ever known.

So on those days that you wonder if what you’re doing helps or if it's worth it, remember - we see it, we feel it… we just can’t always say thank you in the moment.

Keep reaching out to those you love. Keep the conversation going – when your loved one is doing well, ask how you can help when they’re not. Take time to make sure you are grounded, but know that your presence in their life is invaluable when they are struggling. They know it. They’re grateful.

I’m grateful.

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