A Glimpse of the Aftermath

"Goodnight girl," I laugh as I tuck her into bed, kissing the top of her head and trying to avoid the inevitable grab that she gives me, holding my arm, my leg, or any part of my body close to her. Joking around and laughing about how I can't leave her and how I have to stay, to sleep in her bed with her. Prying her arms from around my neck, I drop them to her bed and back away, laughing some more and talking about the outfit that she has laid out on the floor for the next day, hoping that it distracts her before bed. I feel the guilt eating me inside, but I refuse to give in to her playful, passive resistance, knowing that she will be fine and knowing that she will have to learn to trust me again. But still I give her one more kiss, one more hug goodnight.

Just a week ago, I pushed her trust to the limit when my husband and I went out late at night to try and catch the Northern lights on camera, leaving the kids at home with the oldest to put to bed. When I came in after midnight I went to her room and made sure she was tucked in, however I didn't wake her up as I knew that she preferred for me to do. Instead I slipped into bed and fell quickly asleep...  until an hour or so later when I heard my bedroom door open and felt her presence slip just inside the door for a minute while she monitored the room to ensure that I was there, breathing quietly and leaving as quickly as she came, moving back to her bed and turning on her little television and VHS player - popping a favourite Disney movie in to help her sleep.

"Trust me." I tell her regularly.

"Are you alright?" She asks the second that I seem out of sorts - the tears, the quiet, the headaches, the naps... anything out of routine, and she is aware, checking my status, ensuring that I'm not leaving her. 

"I love you." I tell her (and all of my children) daily, sometimes hourly, sometimes more. 

"It's just a cold" I say as I sniffle and wipe my nose, her face etched in worry as she watches me closely and cuddles a little more throughout the day. 

"I promise, I'm okay." I have to say, more than I should... because she doesn't trust me. She doesn't know... she can't be sure. 

"You aren't going to have to go back to the hospital... are you?" She asks quietly, the fear evident in her voice - memories of me being in a locked ward and denying my kids visits, ashamed and unwilling to introduce them to the world that I'm stuck in for the moment.

Out of all four of my children, I see the impact of my decisions the most on my daughter. Although she is 11.5, there are days where she reminds me of a toddler, the way she snuggles and clings to me, insists on sitting just in the same room as me. She doesn't like it when I'm sick, she doesn't like it when I leave, and she is often terrified when I say goodnight. 

I have gone through many episodes in the last 5-8 years to do with my mental health. Throughout my episodes, the one thing that remains consistent is that I never wanted to hurt my kids, and during my decision making process, somewhere along the lines I have often decided that they were better off without me. It is one of the biggest lies of mental illness... the one that warps the truth and forces you to see the burden that you have become, the way that you will hinder or hurt your kids if you remain in their lives, or simply if you remain alive at all. 

Several times I left home over the past five years. Several times I tried to end my life. Several times I simply thought about it. Several times, I didn't know what to do so I just ran, disappeared without a trace. My mind was paranoid, delusional, warped, and at times psychotic, but the safety and the health of my children always seemed to be constant. But that is where the problem lies... when you think you are doing what is best for them, by hurting yourself or disappearing completely from their lives. To the outside it seems hurtful, unimaginable, and selfish - while in your heart and your head, you feel like you are protecting, loving, and helping.

And after it was said and done, after regaining level status and release from a hospital. After realizing the mistakes that I had made and apologizing for leaving. After explaining mental illness - a sickness of the brain to my kids in terms that were age-appropriate and gave them information without too much detail... after all of that, I started to learn about the aftermath. 

I began to learn about the fear that they experienced - the unknown, the whispers that they put together. Eyes and ears are everywhere when you have kids, and while my husband and I have tried to keep them informed to the appropriate level they are at, there are some things that they still find out... that they piece together... that they share between them. When your front lawn is covered in police cars while they search for their mother, it is impossible to hide. When they eventually come to visit you in a place filled with people from all walks of life, experiencing all kinds of mental illness, it is impossible to hide. When memories and fights assault the adults, when tears begin and don't stop, when words are muttered and heard by little ears... they figure it out. They know. They understand. But they can't understand it all. 

And so I tuck my kids into bed each night, and each night I give an extra snuggle when needed. I leave the light on, or do a quick groggy wake up when I come in to assure them I'm home. I let them check me over when I've just got a cold, and I tell them I love them as often as they need me to. 

I show them that I am earning their trust. I talk to them. I build up our relationships. I show them recovery. 

I show them dedication and hard work. I model research, counseling, reading, and talking. I model following a health plan and the doctor's advice. I practice self care, (mostly) healthy eating, the importance of regular exercise, and expressing emotion.

I've seen a glimpse of the aftermath. I know the chaos it causes when a parent decides their children are better off without them.I know the turmoil, the heartache, the mistrust, and the loss of respect. I know the pain, the fear, and the anxiety that comes as a direct result.

I know that when my head starts to shift, that if I don't catch myself, that I might fall again, take a hundred steps back in my recovery - and as a result, theirs. I know it's possible, and I know it's impossible to understand... even those closest to me having a hard time piecing together how I can shift so rapidly, so completely in my thinking. But I know, that I can make a difference now. I can work on myself. I can do whatever is necessary.

And I can fight hard, so that hopefully, with a lot of hard work and support and knowledge, they never have to experience that kind of pain again. 

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Amid the Quiet and the Darkness

I should be asleep right now. Eyes closed, mouth open, snoring softly and dreaming deeply. I should wake up in the morning rested and energized, ready to face another day, fight another battle, and smile another smile. I should be able to close my eyes without my mind racing a million miles a minute – ideas and sparks of restless energy plaguing me as a tiredness sweeps into my brain, just out of my grasp.

As is typical, I laid down to rest tonight – electronics shut off, calming thoughts, quiet, and darkness surrounding me. But I did not fall asleep… could not fall asleep. My mind has been going non-stop for several days now, my heart racing constantly, my brain flipping around like a fish out of water. I’m exhausted but I’m wide awake.

It’s one symptom of bi-polar disorder and for me it is one of the earliest warning signs of a massive shift in mood occurring. It started with a mild depression and some anxiety following Christmas – my sleep becoming disturbed and then I began the upswing. I noticed it one night suddenly… the way that my brain changed complete direction. I couldn’t stop talking – I couldn’t stop thinking – and I felt good – really good. I suddenly felt like showing off – spending a little extra effort on my appearance, working a little harder, taking on a little more. I dove into some work on mental health – on my history, on recovery, on management and skills. I tackled each thing I did with a newfound energy and a vengeance. Most of all, I completely stopped sleeping at night – struggling to get an hour here and an hour there.

A couple of days passed. I saw my family physician who prescribed me something to help me to relax – something that had absolutely no effect on me whatsoever. Finally, I became agitated, the lack of sleep getting to me even though I had all of this energy and I knew it was time. If I didn’t get it managed quickly, it would blossom out of control... it was better to catch it early so that it didn't get too far out of my hands.

Taking a risk and facing a nervous anxiety I took myself to the emergency room – not an easy task when you are frustrated and tired, and you have an irrational fear of (being kept in) the hospital. Thankfully it was a good visit – speaking to the crisis worker and the ER doctor on call I was given a prescription for something to help me sleep – something I had been on in the past and that had usually worked well. Going home with a scheduled appointment with the psychiatrist I was almost excited to get to sleep and get back into a ‘normal’ routine. I should have known better.

That first night, I did sleep. It was broken and I awoke several times, but it was something more than I had experienced in several days. The next night I wasn’t so lucky.

It’s a tricky thing – a mood disorder. You want to live simply – take your meds and get better. You don’t want to have to think about whether you are too close to depression or too close to mania all of the time – but you do. You want to be able to fall asleep like everyone else… but you also have your best thoughts and ideas amid the quiet and the darkness – when the rest of the world is asleep.

I’m thankful for the doctors and nurses, the psychiatrists and the counselors, the crisis teams and all of those people who advocate for better mental health care and knowledge. I am thankful that they take me seriously now when I say I need to level out – when I can recognize the symptoms before they get too severe, and I am thankful that the good ones will work with you for a treatment plan that works for you.

Tonight I’m still struggling with Insomnia and I still worry about entering a full blown manic phase. I’ve seen the psychiatrist and we are upping a medication to hopefully get me to sleep before the insanity begins to set in. I wish I didn’t need meds for that – I wish I could sleep – I wish that sleep wasn’t a requirement so that I could act on all of my great ideas – I wish that my mind wasn’t built this way. But wishes aren’t reality.

And the reality is that sometimes life just sits you down on an out of control roller-coaster and you learn how to hang on tightly at all of the important hills and valleys – knowing that eventually it will slow down and you’ll be able to take control back again.

Until then – I’ll control what I can, pray for what is out of my hands, help end the stigma by talking about it, and rely on the support from friends, family, and professionals to help me get back on track.

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Changing the Game

It was a typical day… perfectly in routine. I was up at 7 and was drinking my morning cup of tea, waiting for my day to begin, the first day of my summer vacation. I was stable. I was level. I was tired. But I was happy. I was okay… Until I wasn’t.

It was a single moment that changed everything, that sent me on a path of watching and waiting and seeing. Like a quickly darkening sky with sudden rotation, a tornado waiting to touch down in my life and send everything – especially me – spiralling down a dark hole again. It was easy to see… I had been down this path before – several times – and it was easy to predict the path that I would take, the way that a trigger of this magnitude would rip the control I have so carefully constructed away from me again. It would be disastrous – I would fall down the rabbit hole of depression and the thoughts of darkness, and desperation, and escape would inevitably hit… I would end up in the hospital again… forced into isolation and psychiatrist evaluations. This was my life. This was what always happened.

Until it didn’t.

Just over three weeks ago I was hit with a major trigger in my life (a crisis of sorts), and just over three weeks ago I began another journey in my life with Bipolar Disorder/BPD. Just over three weeks ago, I panicked in the moments immediately following the hit of the trigger and I felt like I would crash, the feelings rushing back to the surface and my mind working in overdrive and immediately beginning to envision the worst case scenarios – suicide attempts, police cars, hospitalisation, mania, or a psychotic episode. I knew my past and while I knew the stability I had forged over the last two years of dedication and hard work, I also knew how easily it could all crumble again.

I haven’t written much over the last several months – I have been busy and life has moved forward as it often does. Since last Christmas I have experienced stress and triggers, ups and downs, as well as one hospitalisation and one day trip to the emergency room. I have worked to return to a balanced diet and better exercise regimen, to live a balanced life, and maintain the ever-important routine… and overall, I have been extremely successful, finding a new sense of peace and the ability to identify and work on some of my problems and maintain stability with my mental health.

Three weeks ago – for just a few moments – I knew it was all for nothing. For a few moments, I lost myself and returned to the fragile state that would leave me vulnerable and susceptible to another episode. And then, I remembered the months and years of work I've done.

I remembered the steps, and the pages, and the writing, and the distraction, and the help available to me. I remembered to grab my phone and reach out to let someone I trusted know what was happening. I remembered all of the success I have worked towards achieving and I began to put a plan (simple, one step at a time) into place, to maintain my own mental health in a situation that could very well have been catastrophic. I remembered over the next several days to head off a slip up by taking care of my basic needs and maintaining the routine I desperately need to function – eating properly, continuing daily chores/work/plans. I remembered to take the damn sleeping pills when I couldn’t sleep… and to have someone hold me accountable when it took nearly a week to begin sleeping properly again; and I remembered to have a plan in place to seek help if I didn’t. I remembered to take care of myself and to keep my plans, my work, and my support firmly in place - even if I didn't exactly want to.

And I didn't fall down.

And now, three weeks later, I still catch myself watching and waiting for that stumble at times… that sign that I am weak and that I am nothing but my mental illness. At times I wish it would just happen – an episode of some sort - because it is strange to react in a normal way, within an overall normal range of emotions. And at some times, I just sit down and smile, amazed at how well I am doing. I smile because every struggle, every step I have taken to get here, and every experience - both positive and negative - has been worth it to get to the place I'm in right now.

I know that my battle with mental illness isn’t over. I know that I might have episodes of mania or depression or intense emotional outbursts in the future. I know that they aren’t always caused by an obvious trigger in my life. But I also know that I have worked hard at identifying signs, maintaining my support system, knowing my own personal limits, and seeking help when needed to ensure that I stay healthy and strong.

I know that today, I am doing okay. One day at a time, one episode at a time. I am changing the game, I am challenging myself, and I am winning in my fight for stability in a Bipolar/Borderline mind.

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