(Hypo) Mania and Mental Health

• It’s five a.m. and I’m sitting on the couch, lamenting the fact that I can’t sleep – although I typically love to sleep in as late as possible… today I’m not tired.
• Later on in the day I listen to myself as I talk to a friend, telling a story and laughing and joking around. I notice the stutter in my speech – the way that my brain is moving faster than my lips can keep up. My words are skipping out of my mouth, fast as they tumble forward almost at a speed too quick for my friend to catch.
• When I’m home alone that afternoon, the house feels big, empty, and hollow. I want to sit and write or read, or even binge watch my latest obsession on Netflix… but I can’t. My brain won’t focus and I can’t sit still. It should be good, it should be getting me out and moving – but instead I sit and debate what I want to do, not sure, not able to stay focused on my own surroundings or even on a simple task such as washing dishes. I bounce around the house instead. I wash two dishes, tidy part of the bathroom counter, sweep the living room (but only by the fireplace… I’ll do the rest in a minute), wash three more glasses, and empty the trash but don’t quite get it out to the garage. I wanted to clean my house – but when I finally get distracted by playing with Christmas decorations – my house is still a mess, rooms partially cleaned, and dishes still in the sink.
• It’s dinner time. The ground beef is sitting partially thawed on the counter – I had dozens of grand ideas for dinner tonight; I was going to make stuffed peppers, or enchiladas, or even homemade burgers. Instead I settle for the easiest thing that I can think of – Sloppy Joe sauce from a can… and I text my husband to bring home buns because I simply didn’t get to the store like I was going to do.
• After we eat and I clean up the kitchen my daughter asks me to watch a show with her. Sitting in the living room I put my feet up, and then I put them down, and then I cross my legs. I watch the show, but I open the laptop up periodically to check out an actor’s history on IMDB or to Google a fact I heard in the show. Between that my phone is in my hands… responding to texts, adding tasks to my to-do list, and Googling how-to’s for my latest project, convinced that it’s going to be great.
• By the time that bed time rolls around, I feel like I should feel tired… but I don’t. My body is surprisingly achy and I feel shifty and flighty and like I can’t sit still. I lay down on my yoga mat and try some deep breathing and simple stretching. Eventually I head to bed, sleeping partially through the night – jerking wide awake every so often, each time taking longer to fall back asleep… but I’m never fully asleep… always in that place between wide awake and dreaming – the place where you hear the world around you, but you’re somewhat out of it.

This could be the beginning of a (hypo)manic episode... combined with constant anxiety, irritability, visions of grandeur/success/invincibility, and a belief that I’m not just okay… I’m great.

But in truth I’m not… and even more than living with these swings (but in my mood but in my personality)… I hate admitting that I do. I hate the idea that I’m not okay all of the time... or that mental health isn’t as easy as popping the pills that the doctor ordered and staying on top of counselling. I hate that I can’t simply eat healthy and exercise to put my body and brain back in order and correct my thinking. Most of all, I hate that I can’t simply have an anxious, tense, or quick thinking day without wondering if this is it… is this the beginning of the end of stability? Or am I just happy and having a fidgety day?

Was today really a sign that I’m going down (or up) the rabbit hole again, or was this just a natural cycle for a person, still within the reasonable level… graphed on chart to be worrisome but not yet severe?

Am I going to end up in the hospital again? Switching meds? What if there are worse side effects? Will I crash? Will I become suicidal? What if I become paranoid or delusional? What if I start hallucinating again? Does anyone else notice? Maybe I’m the only one that can see it coming… can I fake it? Should I just carry on and pretend that I'm fine? What if I just watch it carefully? I can slow my speech down, I can act ‘normal’. Maybe I’ll shift back down to normal tomorrow anyways… yeah… tomorrow. And if not… tomorrow I’ll call the doctor… just to, you know… make sure… but I’m fine… I know I’m fine… I feel… I feel good… like really good… this can’t be bad... in fact it’s great. I don’t need a doctor. I’m fine. Do I really even have a 'disorder'?

And that’s how easy it is. How fast it is for someone to say ‘I’m fine’… how quickly my brain can go from logical and concerned and on top of my health… to trying to convince myself and everyone around me that I’m okay, and that nothing is wrong.

I wish I could say that this wasn’t a real example that I used. Unfortunately it is, and unfortunately I know my own cycles all too well. Thankfully, this isn’t from today… but the truth is, I have noticed that I am talking a little faster, and I’m feeling a little more awake than usual – despite the shorter day and lack of daylight. I’m not in the extreme and I am continuing the routine I’ve put in place. I know better now… I know not to stray and I know that I need to be kind and gentle and yet firm to keep myself in check. I know that if one more symptom shows I need to get to a doctor as soon as possible, I also know that I need to call anyways to check in and adjust some meds – just in case… the sooner the better.

This is why my mental health is my priority… my ups and my downs could literally kill me. This disease that supposedly has no cure, simply management; it strikes at any time. Winter, summer, spring, or fall, with little to no warning, and always trying to consume me in one extreme or another.

But I refuse to let it destroy me. I have suffered enough – and although I may live with constant worry, stress, and check-ins, I am winning the fight. I am becoming more aware with each and every day, I am sharing my struggles so that others can step in and help when I need it, and so that in turn, I might also help others who struggle.

For tonight though… my routine is calling and so off to bed I go, knowing that as long as I’m not alone in this fight, I will not just survive, but I will thrive. 

** I just want to clarify that I am not at this time manic (although I am as always, watching for any symptoms that indicate that my mood could destabilize).

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Beautifully Broken

I used to believe that I was defective, incapable of obtaining and keeping the same things that supposedly normal people liked to flaunt as though that was the definition of success. By all measurements to western society… I was a failure… broken marriage, broken mind, struggling finances, lack of motivation at times, and a death wish.

Broken.

It’s such a powerful word with a strong sense of permanence. If something is broken, it might get fixed, but it will never be good, whole, or worthy of feeling new; and that was how I felt. Even when life began to make sense again, when God provided, my marriage flourished, our kids grew strong and healthy, and my mind became more stable; I kept this image of broken in my head – I might be glued together for now, but how long would that glue hold strong?

As a result of this fear in me that the fix was only temporary, I learned to hang on to things that mattered to me. I learned to manipulate situations and I learned to fight dirty. I became the angry, bitter woman that lived inside my heart, always fearing the worst and always waiting for disaster to strike. I acted on impulses and emotions, on feelings of justified anger and deserved pain. I loved my family, but anybody else who threatened to break any piece of my already broken life apart was destroyed in my rage… relationships trampled on, people pushed away and broken down, things left behind and ruined.

Over the years, life continued on. Cycles repeated. Treatment ensued. Problems were either worked on, or set aside to be worked on at an appropriate time. Sometimes I fell down along the pathway to recovery, the puzzle that I had been working to piece together for my life shattering as I fell backwards. It was a fragile thing. This thought, this stubborn belief that develops in life that convinced me that broken is bad.

I didn’t realise that the worst was yet to come.

In just over a month it will be three years since I hit a major turning point in my life. November 6, 2014 I tried to take my own life, and in reality, I should have died that day. On that cold and rainy Thursday morning, I felt the most broken that I ever had, and while it was neither my first nor my last suicidal day, it was the day that I truly began to look into the mirror and see the brokenness displayed.

I was broken.

Today, I woke up after a hard and messy day yesterday that bled into a hard and messy morning this morning, and the only word that I could think of was broken. I felt that familiar pang – the reminder that no matter how much work I do, or how far up the path I go, I will always slide backwards, the puzzle will never be solved… I will never be whole.

I felt that familiar nagging, the one that’s always in the back of my head, the one that’s asking me to let go of the hard work and the recovery and make poor choices, the one that wants me to sabotage not only myself, but those who try to intervene. I felt it and I began to embrace it.

And then I looked at the jigsaw puzzle my mom gave me for my birthday last week. I looked at the bottle of puzzle glue sitting on top of the box and I envisioned my spirit, mind, and body as a puzzle – pieces scattered everyone. I pictured myself putting the pieces carefully together and building a stronger me – one that won’t bend or break or fall, loading the glue on in layers to prevent cracking or breaking ever again. I pictured my soul as a complete picture, everything in line and making sense… everything normal. And then I framed this puzzle in my head, a beautiful wooden frame with a piece of glass keeping it together. The image worked. It made sense, everything added up and in line.

And then I pictured the future. I saw a new piece coming into my life and wondered where it would go if I already had everything together, clear cut and organised. How could I add new experiences on, new knowledge, work, recovery, new friends, or even life events when I had already completed the puzzle? I couldn’t.

And then in my head, I saw the puzzle fall to the floor, breaking apart and ready to be built again, ready to add in the newly discovered pieces. As the pieces scattered all around me, they suddenly took on new meaning, new life as I put them together on a different angle, took out some of the stuff holding me down, and put in the new pieces that I’ve picked up along the journey. As I did it, a new picture began to emerge... a new vision of whole, complete and normal.

Today I feel broken.

But it isn’t that I feel unworthy, ugly, scarred, or useless. Today I feel broken because today I am learning new things and adding new experiences into my puzzle. I am learning from the past, and l am looking to the future, unsure of what may come, but ready to build and add and discover. New relationships are being forged daily and old relationships being repaired or let go... new life events, new mistakes, new beginnings... new puzzle.

Today, broken is not a permanent feeling – it is not a failing to succeed or hold it all together or to always make the right decisions. Today, broken is my strength. Today, broken is beautiful.

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A Glimpse of the Aftermath

"Goodnight girl," I laugh as I tuck her into bed, kissing the top of her head and trying to avoid the inevitable grab that she gives me, holding my arm, my leg, or any part of my body close to her. Joking around and laughing about how I can't leave her and how I have to stay, to sleep in her bed with her. Prying her arms from around my neck, I drop them to her bed and back away, laughing some more and talking about the outfit that she has laid out on the floor for the next day, hoping that it distracts her before bed. I feel the guilt eating me inside, but I refuse to give in to her playful, passive resistance, knowing that she will be fine and knowing that she will have to learn to trust me again. But still I give her one more kiss, one more hug goodnight.

Just a week ago, I pushed her trust to the limit when my husband and I went out late at night to try and catch the Northern lights on camera, leaving the kids at home with the oldest to put to bed. When I came in after midnight I went to her room and made sure she was tucked in, however I didn't wake her up as I knew that she preferred for me to do. Instead I slipped into bed and fell quickly asleep...  until an hour or so later when I heard my bedroom door open and felt her presence slip just inside the door for a minute while she monitored the room to ensure that I was there, breathing quietly and leaving as quickly as she came, moving back to her bed and turning on her little television and VHS player - popping a favourite Disney movie in to help her sleep.

"Trust me." I tell her regularly.

"Are you alright?" She asks the second that I seem out of sorts - the tears, the quiet, the headaches, the naps... anything out of routine, and she is aware, checking my status, ensuring that I'm not leaving her. 

"I love you." I tell her (and all of my children) daily, sometimes hourly, sometimes more. 

"It's just a cold" I say as I sniffle and wipe my nose, her face etched in worry as she watches me closely and cuddles a little more throughout the day. 

"I promise, I'm okay." I have to say, more than I should... because she doesn't trust me. She doesn't know... she can't be sure. 

"You aren't going to have to go back to the hospital... are you?" She asks quietly, the fear evident in her voice - memories of me being in a locked ward and denying my kids visits, ashamed and unwilling to introduce them to the world that I'm stuck in for the moment.

Out of all four of my children, I see the impact of my decisions the most on my daughter. Although she is 11.5, there are days where she reminds me of a toddler, the way she snuggles and clings to me, insists on sitting just in the same room as me. She doesn't like it when I'm sick, she doesn't like it when I leave, and she is often terrified when I say goodnight. 

I have gone through many episodes in the last 5-8 years to do with my mental health. Throughout my episodes, the one thing that remains consistent is that I never wanted to hurt my kids, and during my decision making process, somewhere along the lines I have often decided that they were better off without me. It is one of the biggest lies of mental illness... the one that warps the truth and forces you to see the burden that you have become, the way that you will hinder or hurt your kids if you remain in their lives, or simply if you remain alive at all. 

Several times I left home over the past five years. Several times I tried to end my life. Several times I simply thought about it. Several times, I didn't know what to do so I just ran, disappeared without a trace. My mind was paranoid, delusional, warped, and at times psychotic, but the safety and the health of my children always seemed to be constant. But that is where the problem lies... when you think you are doing what is best for them, by hurting yourself or disappearing completely from their lives. To the outside it seems hurtful, unimaginable, and selfish - while in your heart and your head, you feel like you are protecting, loving, and helping.

And after it was said and done, after regaining level status and release from a hospital. After realizing the mistakes that I had made and apologizing for leaving. After explaining mental illness - a sickness of the brain to my kids in terms that were age-appropriate and gave them information without too much detail... after all of that, I started to learn about the aftermath. 

I began to learn about the fear that they experienced - the unknown, the whispers that they put together. Eyes and ears are everywhere when you have kids, and while my husband and I have tried to keep them informed to the appropriate level they are at, there are some things that they still find out... that they piece together... that they share between them. When your front lawn is covered in police cars while they search for their mother, it is impossible to hide. When they eventually come to visit you in a place filled with people from all walks of life, experiencing all kinds of mental illness, it is impossible to hide. When memories and fights assault the adults, when tears begin and don't stop, when words are muttered and heard by little ears... they figure it out. They know. They understand. But they can't understand it all. 

And so I tuck my kids into bed each night, and each night I give an extra snuggle when needed. I leave the light on, or do a quick groggy wake up when I come in to assure them I'm home. I let them check me over when I've just got a cold, and I tell them I love them as often as they need me to. 

I show them that I am earning their trust. I talk to them. I build up our relationships. I show them recovery. 

I show them dedication and hard work. I model research, counseling, reading, and talking. I model following a health plan and the doctor's advice. I practice self care, (mostly) healthy eating, the importance of regular exercise, and expressing emotion.

I've seen a glimpse of the aftermath. I know the chaos it causes when a parent decides their children are better off without them.I know the turmoil, the heartache, the mistrust, and the loss of respect. I know the pain, the fear, and the anxiety that comes as a direct result.

I know that when my head starts to shift, that if I don't catch myself, that I might fall again, take a hundred steps back in my recovery - and as a result, theirs. I know it's possible, and I know it's impossible to understand... even those closest to me having a hard time piecing together how I can shift so rapidly, so completely in my thinking. But I know, that I can make a difference now. I can work on myself. I can do whatever is necessary.

And I can fight hard, so that hopefully, with a lot of hard work and support and knowledge, they never have to experience that kind of pain again. 

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Chaos, Emotion, and A Glimpse

Emotions are a tricky thing.

A little over three years ago I felt okay. I was still struggling with a bipolar diagnosis and finding my own unique degree of “normal”… but I felt like overall, I was starting to get things together. Life was busy and I was keeping up – full time job, four busy kids, the entire family moving every direction with activities, and a marriage that needed work but that was dedicated. It wasn’t perfect, but I did feel like I was starting to get a handle on things – that if I worked a little harder, and pushed through the rough times a little stronger, than it would be okay… I would conquer the madness.

Even though I knew it was stressful and a struggle to move, I never would have imagined that just a few short months after moving I would find myself in one of the darkest places that I had ever been – in essence the start of a roller coaster of a recovery journey. The emotions that floated around my head had always been extreme, but as I began to travel a new road, research my illness’s, and take off the many masks that I had always worn; I found that I no longer knew how to handle anything – let alone the emotions that ran rampant through my brain, fluctuating with little warning, sending me down twisting paths that always felt like they were trying to trip me up.

 

Three years ago I posted on Facebook, trying to make my life seem exciting and good – showing off our new home that we were settling into and bragging about the beauty of living in the country; I was trying to make it seem like an adventure that I fully intended to not only participate in, but to enjoy. And yet just yesterday, I found myself curled up in the corner – struggling to breathe as I battled emotions so intense that I felt like I had been propelled right back to the beginning of my journey. As I fought through my emotions and worked through the steps that I have learned to bring myself back to the present I grew overwhelmed – upset, frustrated, and confused – over both how far I have come, and how far I have left to go.

Just yesterday, I found myself wondering if it was worth it… if I would ever be the vision of “normal” that I have spent years aiming to be.

And then I was okay again. My mood bounced back up. I smiled… I cuddled… I played with my kids… I felt hope and motivation. I felt good – even if it was only for a brief few minutes before the chaos resumed inside my head.

And throughout the day I used up my strength – my inner monologues and my conscience fighting amongst itself. I used up my patience and my own understanding – I used up my own pool of excess emotion to propel myself through dinner, through conversation, and through the evening with the family. By the time that bedtime arrived, my head hurt and my brain would not shut down. Things people said – the way that I reacted – the things that I did and felt and said and saw… it all replayed on repeat. My emotions swirled back up and as the exhaustion settled in, I wasn’t sure that I could bother to repeat the steps and the process to calm myself down and think rationally.

And the worst part is – sometimes I question it all.

Nights like tonight, where I can’t sleep and my brain works non-stop, I wonder if it’s worth it to keep moving forward on this spiralling pathway that I’ve chosen. I want healing. I want recovery. I want to be able to say that I did it… I conquered those thoughts… those ideas… those reactions. I want to be able to say that I have no more darkness in me, and that medications and therapy and a lot of work has helped to restore my brain to some semblance of “normal”. I know that tomorrow I will mask it again and I know that I will pretend that I am okay as I work through more of my “stuff”. I will smile and make nice, I will socialise, I will bring up normalcy and stigma, and I will talk about fighting and winning against mental health.

But the truth is; emotions are not easy – and fixing chemical imbalances and learned behaviours and reactions, is more difficult than anyone will ever admit to.

Because the truth is hard to admit.

It is never easy to say that you are struggling and that you feel like a failure.

It is never easy to say “I’m not okay” or “I’m suicidal today”. Stigma is everywhere – in the world, in our friends, in our homes, and in our family. Our loved ones become numb to our pain or our confusion – our constantly heightened sense of emotion and our inability to deal with life in an appropriate way. Compassion fatigue allows those who we trust with our baggage to become desensitised – to possibly say the right things but without meaning, or to simply ignore our struggles and our victories.

And so we return to the places we came from – hiding the truth and masking our journey with quotes and inspirational sayings. We pretend that although it may be tough – that we are fighters and that the worst of the journey is over, just a few small hurdles left to clear.

My emotions are not okay. My own emotions might never be fully okay or one hundred percent manageable.

After years of working on controlling them, on doing recovery work, and on researching therapies that can help me process and see things differently – I can honestly say that some days I feel worse, being aware of and in a position where I am expected to be able to redirect those emotions, and process things in a more acceptable manner.

A little less than three years ago, I tried to jump off of a waterfall and my life was saved by two police officers who pulled me to safety as I let go over the ledge. I was confused and unable to handle my emotional state – I was depressed and while it was an intentional act, I was also unaware of the depth of my own state of mind, and the way that my brain processed things differently. I wish I could say that being in that place, was the worst day that I have experienced.

But the truth is, it wasn’t.

Some days are utterly unbearable and there are many days where taking my life still seems like an appealing option… a better option than living in this constant fear, pain, and chaos.

But then I remember the good days. I remember the small victories that I am the only one who has noticed – the way that I didn’t go to bed one night feeling like there had been a massive war inside my head… or the way that I controlled myself in an overwhelming situation… or the time I set a date for myself to make a decision, and then I let it pass by. There are victories every day. There are reminders and support systems and people who might not ever “get it”, but who are there. There are the days that I force myself to talk about it – the good and the bad – the victories and the struggles, so that other people might not feel alone any more… or so that someone else might see the battle that I face. There are the days where I say I will not give up – and there are the days where I cannot do much more than sit and pretend to be okay. There are days where compassion fatigue and struggles of their own prevent my friends and family from checking in or from being able to help when I ask… and then there are the days where they are there – a touch, a hug, a tea, a friendly “hello”, and I hadn’t even thought that they noticed.

Three years ago I had no idea what I was doing. I was simply trying to survive in the best way that I knew how – with no knowledge, no true support, and no ability to identify what was really going on in my head.

Today – I still feel the same way a lot of the time. But emotions are tricky, the mind

can be a complicated maze to navigate, and recovery is never a straight pathway. So today – while I don’t understand, and while I have chosen to stop trying to navigate my head for a while, I will talk about it. I will share a bit of the chaos – I will share a bit of my life. And sometimes, sharing a small glimpse into someone else’s head, is the very best thing that you can do.

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Recovery in the Quiet Times

Today I’m taking a quiet afternoon to myself. During the process of self-discovery and recovery, where I have spent hours upon hours trying to understand my own thoughts, emotions, actions, and reactions – I have discovered that I need space. I need time. I need to breathe.

When my husband and I met, we were in high school. Soon after we began dating, our first son came along – followed by three more children, college, and careers. Life spiraled faster than we could see coming and we embraced it. From sun up until sun down we worked – we went to school – we played with our kids – we paid bills – we rushed around from one thing to the next. There was rarely any time for anything else. We were young and we had a family that depended on us.

During this time, my battle with mental illness was just beginning to pick up its pace. There would be many days where sleep was an illusion, fighting became my go-to reaction, and life didn’t make sense. Pushing through, neither my husband nor I really understood why we did the things that we did, how to change, or even what was wrong.

Of course, life simply can’t continue on forever in a tangled, confusing, chaotic mess and so when we crashed – we crashed hard. Both of us faced demons from our past, triggers from the present, and emotional/mental/physical problems that neither of us was prepared to handle. We nearly gave up; on ourselves, on each other, and on our marriage. We didn’t deal with things well – our problems spiraled, my mental health became a severe mental illness and I almost lost my life.

Since then, life has changed for us.

Thankfully, we have been able to establish an incredible support system and have opened up to friends and family along the way. Through our journey – both together and individually we have discovered things that we couldn’t have even begun to comprehend before this point. Things in our life – the way that we think, feel, and act are changing – and as our knowledge grows and we spend hours in self discovery – we continue to find better ways to move through life – both separately and together.

For me, one thing that I have learned – is that I need ‘down time’. Without down time my mind becomes muddled – call it chemical, genetic, or a product of life – it is something that I have learned is vital to my ability to function well.

Personally – I find this frustrating.

It isn’t that I don’t like life – in fact I do very much like living a full life. I like to go out. I like to spend time with friends and family. I like to explore new places, things, and people.

I also like to be alone.

Sometimes I need to be alone.

Sometimes I need to take a break in the middle of the week – I need to sit on the couch with my feet up and a book in my hand. Sometimes I need to close my eyes and have a short nap. Sometimes I need to literally sit and do nothing.

And yes. Sometimes I get frustrated with myself. Sometimes I wonder why I can’t have endless amounts of energy like my husband seems to have. Sometimes I wonder why I can’t function in the same way that everyone around me seems to be able to – pushing through and just faking it.

But I can’t. Believe me, I’ve tried.

I have spent countless days in misery as my mind became overwhelmed with pain and fear and anger and confusion. I have spent time in the presence of people where I have broken down, unable to continue on a conversation because I have put myself into a situation that I cannot handle at that time. I have been to the point of suicide because I simply can’t do life anymore. I have felt like my brain has been cracking down the middle, fighting with itself – two sides of the canyon – one side yelling at me to be normal, to keep going, to just ‘suck it up’, while the other side of me begins to see things, hallucinate, become unstable, paranoid, or simply dark.

I have fought through instability, mania, depression, and borderline rage. I have struggled to find level – and I have struggled to keep myself from falling down a rabbit hole more times than I can count. I have spent more time than I care to remember in hospitals, in counselling, in groups, and in study – trying to understand why I just can’t function ‘normally’.

And finally, I have spent time fighting. Fighting with myself. Fighting with others. Trying to explain to them – what I can’t even explain to myself. I have spent hours crying because I can’t do what I desperately want to do. I have spent time debating, explaining, and eventually silent, because others in my life simply don’t get it. I have felt guilt over relaxing, and fear over a fight that I was sure to come, if I spent those moments quietly – if I cancelled plans, or if I just said no.

But now, after years of work. After walking a recovery journey that fills me both with pride and frustration, I finally have the confidence to say enough is enough. It doesn’t matter. I don’t question a diabetic that needs insulin. I don’t question a cancer patient that needs rest. I don’t question a person struggling with an illness on why they need time to recover. I respect it. I respect them. And I respect myself.

There will always be people in my life who don’t understand this need I have for time, space, and silence. But I don’t need them to understand… now that I understand, I get it. Not everybody needs the same thing that I do – and not everyone is going to see what not having these things will do to me. And that’s okay.

I’m okay with that.  And that, is how I know how far I’ve come.

That is how I know – that regardless of whether or not other people may understand my actions towards my recovery and myself, I know that I am doing what I need to do – with confidence, with guidance, with support, and with determination. These are the things that I have learned. These are the things that will ultimately ensure my success.

So now, I’m going to go sit quietly in the corner of my couch, my kids sent outside to play in the sunshine, my husband puttering around the house, and a book in my hands. No justification. No fighting. Just doing something that I desperately needed to do today, to avoid a break. Just being me.

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Two Roads to One Destination

Whispered truths.

Admissions among friends with the clause that nobody can know... or requests that they don't say anything to a certain person or a certain group of people.

Fear of judgement. 

Fear of the unknown. 

Fear of failure. 

I want to say that I am stable on my road to recovery. I want to write about how I embrace myself and all the quirks that come with who I am and the way that I think, act, or feel. I want to say something profound - some truth that will be earth shaking. I want to be solid in my thinking - to say that it is all  a straight pathway as I navigate my journey. 

But I can't. Because I'm not. 

I still have good days and bad days. Lately? It's been manageable and I have seen some major improvements in my thoughts and my behaviors. I have been sorting out my routine and my life, sticking with meds and putting in the work required to live in stability. 

But it doesn't mean that my journey is over or easy at all. In fact - it's almost the opposite. 

The further down the road to recovery that I travel, the more I see from those around me - the expectations that once I'm good - I'm good. An unspoken agreement that I might be able to slip back a step or two, but to completely fall down, is unacceptable. The looks and whispers and judgement that I see and/or hear when I say that I am having a difficult time and when I say that I need to do something different than what is acceptable to my friends or my family.

It comes from everywhere and it isn't deliberate. It simply isn't understood. 

I have a diagnosed mental health condition. My brain might never fire correctly on it's own... it might mean that I will travel a lifetime of medications, counselling, and constant self monitoring. It might mean that I will slip and fall and need help getting back up. It might mean that one day I will not appear to be the person that I appeared to be the day before.

Right now I'm doing somewhat okay... and I truly hope that I remain stable and level and in control. 

But I am also aware of the possibility that I might fall. I am aware of the fact that I might need to take some extra steps to ensure that I keep going on the correct path - even when it causes you to look twice at me.

Sometimes I make decisions based on my mental health - something that I don't usually admit for fear of being misunderstood or of being seen as weak, or excusing behavior. Sometimes I feel close to my breaking point - about to slip and fall, hanging on by a thread because of a fear of doing something that I need to do to maintain stability. 

It's a constant truth. It's a constant secret. 

Recently I made a big decision in my life, that really brought out this fear in me. I gave very few people the real reason that I made the decision that I did - bringing in other factors in my decision and making those the focal points. I avoided the truth... and the truth was that it was something that I needed to maintain my stability. I could feel myself falling down this rabbit hole, spinning wildly and trying to hang on for dear life. But I could feel my grip slipping and in the end I made the decision that I felt was best for me, my health, and for my family. 

But I didn't tell people that. Even those closest to me. I made other excuses and gave other reasons, but I didn't just come out and say that my health required me to make that choice. And it was because of this fear. This hidden feeling of judgement within me. 

Is it real? The judgement, the looks, the lack of understanding?

I can say yes with certainty. It is something that I have discussed at lengths, in conversations with family and friends that have left me vulnerable and afraid, worthless and like a failure. Conversations that have expressed frustration and impatience with me for being the way that I am, and not being able to just do what everyone else does. Conversations that have left me questioning who I am, what I'm capable of, and whether or not the people in my life are better off without me. 

I wish that I could say that I didn't care about the opinions of others or about their judgement and their misunderstanding of me and my situation. I wish that I could say that the looks, the comments, and the hurtful words slid right off me, never sticking, never bothering me. Although I try to let that be true, it isn't always the case.

Thankfully I'm in a place now where I can try and fight that fear. That need to whisper and keep my reasoning quiet. I am in a place where I can speak up and fight for what I need to maintain a stability in my mind. 

But sometimes it still hurts. Sometimes it is still difficult to explain. Sometimes it doesn't even make sense. 

But I can walk away knowing that I am doing all that I need to do to stay sane and to stay level. I can stand tall and firm and know that just because those around me might not understand, it doesn't mean that I am wrong, or weak, or making excuses. 

I can also try and raise awareness. I can stop the whispering and talk in a firm voice. I can say what I need and why I need it. I can show those around me that I am strong and capable despite my illness. I can take care of myself and ignore the fear of being different and of being judged. 

I can stand out. I can stand firm. I can stop the whispers, the lies, and the secrets. I can make having a diagnosis and living my life in a way that works for me, okay. 

Because I am okay. I am fighting, and I am working, and I am changing. My diagnosis does not define me, but it does help me find the pathway that works for me, sometimes, there is more than one way to live, more than one choice that can be made.

Sometimes there are two roads to one destination and while one might look different, or frightening or simply strange; sometimes it is the best path for your journey.  

 

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Labels, Labels, Everywhere

Woman. Mother. Wife.

Bipolar. Borderline. Psychotic. Unstable.

Balanced. Stable. Healthy.

Unhinged. Wired. Manic. Crazy.

Happy. Sad. Up. Down. Chaotic.

Overwhelmed. Exhausted. Scarred. Incapable.

Me.  As I am.

It's amazing how many different words float around in my head on a daily basis - contradicting thoughts, emotions, and definitions. It isn't that I try to label myself. It isn't that I want to label myself. It just is what it is.

The fear wells up in my head on a daily basis - the thought that I'm sick and that I'm not complete - the idea that I'm missing an essential piece of who I am.

I want to define myself - I want to know exactly who I am.

But the problem with that... is that I truly don't know from moment to moment what that will look like or even why I crave it.

But I do.

Maybe it's the thought that I will always be unwell, that I will always have the threat of another breakdown looming over my head. Much like an alcoholic will always be an alcoholic - I will always have Bipolar Disorder, I will always have a history of being unstable. Medications can help to keep me level. Counselling and recovery programs can help me get to the root cause of my problems, they can help me analyse my behavior and show me what I do and why I do it. But as it gets easier to address my issues and even easier to recognize my own faults, triggers, fears, and episodes - it also makes it more constant... giving me an awareness unlike anything I have ever known before.

And I look around me and I see people - everyone with their own label that I can see them trying to overcome and I wonder if I will simply replace one label - one problem - with another.

And I see online - articles about identifying the Borderline in your life - telling spouses, family, and friends of those with the disease about the horrible things that a person with a Borderline personality will do. I see the other side of the argument... pages and articles written by those with Borderline, Bipolar, Depression, Anxiety, PTSD, OCD or any number of Disorders begging those in our lives to understand - to love us anyways... to be patient and kind and loving... we don't want to be this way.

And then I flip through more social media. And I see the meme's... the ones that say that you can change your life - you can be whoever you want to be - you are stronger than anything - only you can make yourself happy - only you can love yourself - only you can define yourself.

And that's the thing - there's truth to all of it. A little bit in each. But it isn't as simple as that either.

I give myself labels every day.... some days I feed off of a word - a diagnosis. Some days I spew that word out, that label with hatred - swearing that I am more than that. Some days I just feel resigned to it. I am this. I am that. I am good. I am bad. I am sick. I am healthy. It is my fault. It isn't my fault. Some days I just wish it was clear.... I wish that labels could be stuck to our foreheads when we wander outside - so everyone could see what we ourselves feel like - so that everyone could see that every person out there has something that they are insecure about - something that they doubt - some way that they see themselves or feel about themselves.

Some days I wish it were like that - but only with positive things.

Photographer. Friend. Child of God.

Strong. Overcomer. Courageous.

Authentic. Honest. Friend.

And I wonder - why can't it be. Why can't we wear our labels proudly? Some days we are not going to feel positive, but maybe - maybe if we remember the positives a little more often, they'll shine through a little stronger - overpower the negative a little bit more. Maybe then our beauty will be the first thing we identify by and the first thing that someone else sees.

Maybe instead of the woman who tried to kill herself and that struggles with Depression and Bipolar and Borderline Personality... I will be the woman who is kind and thoughtful and empathetic and strong and courageous.

Some days I will fail at this. Some days, my own labels will overpower everything else and creep up on me and define me. But on the days where I am able - on the days I can say with pride - "my diagnosis doesn't define me" those days I will shine. Those days I will help erase stigma. Those days I will help another find hope. Those days will strengthen me. Those days will be the ones to propel me to keep going - to continue fighting - to continue talking.

Those are the good days. Those are what I want to define me in the end.

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To Those Who Have Stuck Around

I had always been the odd one out. Periods of isolation, enthusiasm, obsession, and short-lived friendships were normal for me. I thought it was just girl-drama – that nobody was really as close as those best friends that they portray on television. I didn’t realize or understand that my clique-jumping and inability to really get close to someone (without becoming obsessive, envious, or eventually angry) was really the early stages of my Borderline Personality Disorder rearing its head. I also didn’t realize that my hobby-jumping, sports switching, club shifting – followed by periods of doing nothing – were indications of Bipolar Disorder. To me, I was normal - I didn't understand why I wasn't like everyone else.

He’s been with me for seventeen years now. We have survived through the emotional roller-coaster – the turmoil, the ups, the downs, and the chaos; and some days I truly wonder how we made it.

It’s on these days when I sit and think about it, that I don’t really understand it at all. Don’t get me wrong – I love my husband with all of my heart, but I know that I am not an easy person to live with, and some days I am definitely not an easy person to love.

You see, I didn’t just wake up one day at twenty five years old, suddenly psychotic and breaking down – sick of life and unsure, and well, mentally ill. Looking back through work that I am doing, I can see the traits as they developed through my childhood and early adolescence. I can see peaks and valleys, I can look back on the skewed thinking and my alternate view of the world around me, and now that I know better, I can honestly say that that is where it all began. As the years went by and life became busy and hectic and stressful – triggers were found out and I came up and down and to the edge of the cliff mentally, several times before it all became too much, before I was finally unable to handle it myself, and before I finally began to get help.

Sometimes I was mean and angry – I yelled and I pushed my husband (and others I love) away. I didn’t know how to process things and it was the only defense that I knew and that I trusted. Other times, I was energetic and ambitious – my dreams were infinite and I could tackle the world around me… I was obsessive and perfect, my life looked like a happily ever after to those outside our little bubble. And then, then I would fall – depression would engulf me and our happy family was miserable. I would become isolated, disinterested, hateful, and self-loathing. Everything appeared blackened and I dragged my husband and a few select people through my darkened world as I contemplated life – but more often death. As I threatened suicide, ran from my home, slept in my car, placed myself in dangerous situations, and scared the hell out of people that I desperately wished could help me, but who didn’t know what to do.

And yet, they still loved me. They showed me kindness, forgiveness, patience, and overall love. Even on the days where I believed I couldn’t be loved, and that I didn’t deserve any of it – they stayed. They put up boundaries for their own safety. They stayed awake and stopped me from leaving the house. They called the police. They let me sleep on their couch. They talked to me. They didn’t doubt my heightened feelings. They tried everything that they could, and they kept me safe.

I know that some days were harder than others. I know that at times I drove my husband to the brink with worry for me. I know that some days, he (and others) had no idea what to do. I know that on days where I would disappear and they worried for my safety, they did what they had to – they continued on. They cared for the kids. They cared for my husband. They prayed for me. They confronted me. They took my anger and they made decisions in my best interest, sometimes against my own judgement.

I wish I could say that now that I am stable and on the right track, that things were easier. But that would be a lie. Because when the disease is in your head, in the way you think, react, and control situations, you can’t just turn it off. The work that I am doing helps. It has made a dramatic change in me and I can honestly say that I can handle more of my triggers, better than I ever have before.  But there are still days and moments when I know that I am difficult to say the least. I know that there are days when my husband wishes that I were ‘better’, and that I could just ‘stop’, the way that my brain works. I know that there are times when I do or say or fight for something and he wants to blame my mental health, because sometimes that is easier. I know that there are some days when he wishes there was no mental illness to blame. In other relationships, I know that others do not understand and I know that I still hurt others when I isolate myself or react badly to a trigger or situation.

Trust me. I know.

And I’m grateful. I am so very grateful that they try. I am grateful that they don’t give up, and that I don’t scare them away. I am grateful that they worry and that they check in on me. I am grateful that I am even a thought in their day.

And I am grateful to my husband. It isn’t easy to be married to someone with a mental illness, and we have definitely gone through some very rough times in our marriage, but we’re together… we’re struggling through the murky days and coming out to brighter ones… more often, longer lasting, and more vivid than we’ve ever known.

So on those days that you wonder if what you’re doing helps or if it's worth it, remember - we see it, we feel it… we just can’t always say thank you in the moment.

Keep reaching out to those you love. Keep the conversation going – when your loved one is doing well, ask how you can help when they’re not. Take time to make sure you are grounded, but know that your presence in their life is invaluable when they are struggling. They know it. They’re grateful.

I’m grateful.

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Precision of Language

Precision of Language.

I was watching the movie “The Giver” this morning and this phrase that is repeated throughout the movie started to click with me. I have never believed that my vocabulary was inadequate, knowing that I can read, write, describe, and discuss things with clarity and precision. But as the film, which is (very loosely) based on the book “The Giver” by Lois Lowry, continued on, I began to understand that I do not in fact, always have the correct words to describe my mental health.

It’s an interesting realization, and also a very good explanation as to why I tend to pull back into myself when I really begin to struggle. There is a quote from the original book that stands out to me as  I think through my own life and my own ups and downs, the periods of indescribable pain and mania: “Even trained for years as they all had been in precision of language, which words could you use which would give another the experience of sunshine?” (p.90).

The quote above is a truth that strikes me deep within. It is a quote that speaks to me on many levels and with many different reminders. In the negative, it reminds me that at times, I am alone in my true feelings. It explains how during periods of depression, anxiety, and even mania and psychosis, that nobody else will ever truly know the feelings that I experience; that my words will never be able to give that feeling to another person so that they can help more, understand better, or simply feel as I do. It is a truth that many people that I have interacted with have shared with me – the loneliness of their lives and their world, which is often coloured differently and skewed from what is considered to be ‘normal’ perception.  I have experienced this myself – it isn’t necessarily a bad thing and the quote can also be used as a reminder to me that no, unless they have experienced the exact fluctuations in mood that I have, they will not be able to understand completely. But that is also the key. When I remember this, it is much easier for me to share my experiences, with lower expectations.

I fully admit to times where my expectations have exceeded what can realistically be accomplished. In my relationships there have been (and sometimes still are) many times when I have wished that those closest to me could jump inside my head and just ‘get it’; that they could see, and feel, and experience those things that I do. Remembering that no, they can’t do that is a good way to open myself up to accepting the help that is available and the relationships that can be built. If I can lower those expectations, then I can fully embrace their friendship, knowing also that they accept me as I am, without needing to experience my pain themselves. It is a very powerful revelation.

In the same way, this reminder also applies in the reverse. It allows me to accept others and their experiences as valid, and as deep and as complicated as my own. As much as I want to believe at times in a ‘normal’ range of emotion and feeling – it will still always be an individual concept. Accepting that, I can accept another person’s experience and readily admit that although I do not always understand them, I can support them, love them, and be there for them in their times of struggle. It is a very grounding concept that although words exist in abundance, there is not always a “precision of language” that can describe such a personal experience, which will truly allow another person to experience the exact same thing.

Precision of language. The more that we share, the closer we will get to fully understanding each other. The more that we accept that no matter how precisely we describe something, it is still impossible to duplicate within another person exactly, the more that we will end stigma associated with periods of mental illness, struggle, and outside thinking. The more that we accept that it is a personal and individual concept, the more open we can be to those around us struggling. The more that we accept an individual and their pain, struggle, internal battles and victories; the more that we can normalise people, mental health conditions, treatment options, and a diagnosis that no matter how precise the words, can never fully explain the condition.

So let’s keep talking. Let’s lower the expectations. Let’s describe as fully as we can the experience, and let’s listen to support and raise our understanding, accepting that we may never fully ‘get it’, but loving the person anyways.

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Simply Good

Good. It’s not usually the first thing that pops into my head when someone asks me how I’m doing. I might say it… but I don’t always mean it. Sometimes telling people that you’re not okay is even more stressful than lying – than telling them that I’m okay when I’m not.

But today… today I realised that when I was asked how I was feeling – ‘Good’ was my answer and it wasn’t even a lie. I was happy, I was energetic within reason, I was feeling light - I was good.

I think it’s important to take note of these days.  It’s good to mark them on the calendar, journal about them, or to simply share them with someone else. Because sometimes ‘good’ is so far out of grasp, that I need the reminder. Sometimes good seems like a fantasy - a mythical thing that is always out of my reach.

Of course, life isn’t easy. I still struggle. Some days are still way harder than others. I had a recent bout of depression. I’m struggling with working through some things and continuously face triggers, challenges, sadness, and anger. I've had some recent physical pain. I take pills for my mood and for my sleep – they work great, but the side effects suck. My long-term mood isn’t magically better because I feel good for a day.

But feeling good for a day, or two, or three can help. These days ground me. They bring me to a place where I can learn and assess, acknowledge and forget, forgive and find peace. I can do nothing or I can make plans. I can work with ease and I can interact normally. While there is still ‘stuff’ in my head – it’s like a movie on pause for a few minutes while I take a breather.

Today, the words ‘good’, ‘fine’, and ‘okay’, are simply words in my vocabulary. They aren’t covering up some hidden depression, or internal battle, or some urge to either cry or scream.

I have to admit – that sometimes, ‘good’, is even scary. Sometimes good has been a distant memory for so long that it’s new and it’s terrifying and I even want to fight good – find something to bring me back to familiarity – even if that familiarity is anything but good.

Thankfully, today I am just good. I am not running from it. I’m enjoying the calm and the peace; the breath that I desperately needed away from the constant negativity of myself. Today I am smiling and I am laughing. I am thinking, but not overthinking. I am learning and I am growing and I am holding onto this feeling for as long as I can.

It simply just feels good.

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The Invisible Prison

Locked inside.

Like a prison – without bars.

It’s almost impossible to explain.

I looked in the mirror this morning – I looked for a long time.

I couldn’t see anything.

I mean, I could see myself. I could see that I looked… well… normal. Aside from some darker circles under my eyes from not sleeping, I appeared the same way that I always do. As the day went on I listened to myself and noted that my voice was the same… still light… still happy… still social.

And it made me incredibly angry.

I was pissed off at myself for not looking the way that I feel. I was so angry that I have gotten so good at functioning on autopilot, and talking about things as though there aren’t a billion and one things flashing through my head constantly, and for just looking – and acting – like it’s another day.

I know why I do it. I’m high-functioning. Sure, every now and then I go through something and end up at the hospital to adjust some meds, or get my sleep patterns back to normal. But for the most part I am calm, rational, able to talk and think and work and relate. My kids are normal. My marriage looks normal. My house is usually clean, there are home cooked meals on the table, and I bake and take photographs, and I write. I function… and I function well. Logical me splits from emotional me and for some reason I can still live day to day life while feeling like I am going to explode on the inside.

And that’s why I’m angry. That’s why I can’t understand myself and I am often torn into two pieces as I try to understand my own confusion, and justify outbursts, emotions, or breakdowns to the outside world. For the most part, my illness is completely locked inside of me.

And often times… I’m just not okay.

If I’m going to be honest tonight… I will say that I haven’t been okay for weeks. My husband knows… a couple of people close to me have a small idea… but even when they know – it’s hard to grasp it, to see what I feel on the inside.

It is impossible to look at someone who can appear normal, and understand why she says that she is in emotional agony. It is nearly impossible to understand how a person can be at work, literally walk out the doors and disappear inside her brain – become non-functioning; become delusional; begin to hallucinate; and plan to commit suicide.

It is impossible to understand how someone who appears calm and happy – who laughs and has what appears to be an amazing night, will not be able to sleep; to understand the fear of sleep… of nightmares… of memories. It is not easy to imagine how someone can stay awake for days – and still function… at least until the inevitable crash.

It is impossible to understand the prison of the mind that won’t let you out. That splits into voices and monsters and hallucinations and paranoia. It is not something that most people have experience with, and few people will ever ask about it… their own fears overriding their concern, as stigma and ignorance rears its head.

It doesn’t make sense to anyone who has never experienced it. The isolation. The loneliness. The fear of living. The desire to die. It doesn’t make sense to see a person smiling and gripping a mug of tea with both hands, carrying on a conversation like any other day – only to find out that minutes before they were gripping a bottle of pills; ready to end it all. It doesn’t make sense to hear them talk about it. To hear them speak as though it’s another person, in another mind, in another body.

Knowledge of mental health says it is dark, and people don’t talk. It says that they spend days in bed and crying and that it is obvious if you look hard enough, to see someone struggling.

But mental health awareness doesn’t always seem to cover what happens when the illness is diagnosed – it doesn’t talk about living with the disorders once medications are ordered, therapy is started, and any potential crisis is averted for the time being. It doesn’t cover the fact that it never goes away. It doesn’t cover the day to day struggle that someone living with any number of mental health conditions lives with. It doesn’t even seem to cover the more ‘scary’ aspects of mood and or personality disorders. Depression, anxiety, even basics of bipolar seem to be covered. But mention suicidal ideation, narcissism, borderline, schizophrenia, voices of any kind, hallucinations, paranoia, hospital visits in locked wards, medications that don’t work, messy side effects, constant insomnia, rapid cycling, or simply exhaustion from dealing with it all – and people just don’t know. And I don’t blame them. Because for a lot of it – it is terrifying – for the person dealing with it, and for their loved ones. It’s also exhausting. It’s also often invisible. And the one that people don’t think of, is that it is actually humiliating and shameful.

I don’t know anyone who wants to be labelled with a serious mental health diagnosis – because as much awareness is being raised… it is still taboo. There is still the thought of drooling patients, straight-jackets, asylums, and archaic treatment methods. There is still the stigma that if you look normal on the outside, it can’t really be that bad on the inside.

But the truth is. It hurts. It is more painful than any physical ailment that I have ever dealt with. It is confusing and embarrassing and unpredictable. I am terrified most of the time – of myself, of my illness, for my kids, and for my husband. It doesn’t take a break. Even stability can’t give me reprieve.

And the truth is, that every day is a struggle to continue. Some days are far worse than others. Some days I picture myself ending it – some days I even plan it. Some days I can’t think straight, and I’m literally not the same person as 'usual'. Some days it feels like I have multiple personalities and as much as it confuses those around me, it confuses me even more. Some days are so dark, it feels like I will never see the light again. Some days I literally feel insane - I'm not present in my own head - I see the world in a skewed manor, I make irrational decisions, and I am delusional and on the verge of (or actually am) psychotic. Some days I turn on the autopilot that I hate so much because without it, I would give in and I wouldn’t be here any longer.

Some days, like today, I look in the mirror and I hate what I see. I hate the invisibility. I hate the smiles and the determination to appear normal despite the pain and the chaos. I hate that the cliche sayings are plastered everywhere - especially on social media - that tell you if you want to be happy, then you make the choice, or that you are the only one that can decide what you, or your day, or your life are going to be like. I hate that for me those things are impossible to control. I hate that there isn’t a magic fix-it tool. I hate that even those closest to me, just want to avoid what they can’t see. I hate that I push people away, as much as they avoid me. I hate that I can’t always fix it. I hate that I can’t shove it into a box, slam the lid, and make it disappear. I hate that the harder I try, it feels like the harder I fall, and the stronger the urge is to give up completely. I hate that this is - and will be - a lifelong battle. I even hate that I’m here, writing about it.

Right now, even while I type.

I’m locked inside of my head.

I’m trying to let myself out… but it really is like a prison.

I know I’m not well. I also know what to do. And at the same time – I don’t.

So... I'll see you tomorrow. I'll be smiling and talkative, I'll be at work, and I'll look just like I do, every other day.

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Meds, Moods, and (Hypo)Mania

For the past several weeks, it’s been there. Lurking below the surface, hiding behind the pills and the effort and the struggle to find a new routine – one that would work for me.

Every day I have faced the same fight – the same urge to let it go and take over filling me as I try to remind myself of the reasons why I can’t do that. The reasons why I have to stay in control and be obedient and keep putting in the effort.

Insomnia.

I’m not tired.

Emotionally I’m completely drained and yet for the most part I’m physically wide awake almost all of the time. The past couple of days it hasn’t been as prominent as I battle a sore throat and head cold – but it’s still there, taunting me at night, pulling me into a fantasy world that I want so badly to be real.

Logically I remind myself to take my pills daily – and I manage to make myself obey. Every morning I take what I need to without a second thought, never even thinking about disobeying that one. But in the evenings as the house is winding down, the kids are in bed, and my husband tells me that he is turning in as well – the battle begins.

I’m supposed to take my mood stabiliser at night – it also puts me to sleep. And every night I do take it… but not before a battle of wills takes place. Because every night I can feel it, the hypomania that is hovering just below the surface. The creative energy that is flowing – the ideas, the ambition, the beginnings that happen when I am in that state beyond appealing to me. It’s a feeling that I honestly love. And it’s there right now… waiting for me to miss a pill, to forget… or to simply choose not to take it. But every night I do.

Every night I lie awake and wait for the pills to make me drowsy enough to want to close my eyes. Sometimes it’s an hour, sometimes it’s three. And then I do sleep – the kind of sleep that I can only ever get if it’s induced with the help of a med.

And now, several weeks in to this mess in my mind, I’m starting to feel the effects – I’ve been staying up later and later, waiting to take my pill until I know I have to get at least a little bit of sleep. I’m agitated because I’m tired of the fight – I’m tired of fighting what in a way feels natural to me, what my body wants to do. I’m angry and I’m bitter that I can’t just take my pills regularly and forget that I have this illness that can take over at any time if I’m not careful.

I want to say screw it.

I want to just give in and let whatever will be, be.

But more than that – I actually want stability.

I want the kind of stability for myself where I don’t have to argue with myself to take the medications that I know keep me level.

I want the kind of stability where I don’t have to think about my illness every day, and include it in every decision that I make.

I want the kind of stability where I feel ‘normal’ or at least as close to it as possible.

I want the kind of stability where I don’t have to try and figure out which part of me is right – the logical part or the wild part or the emotional part.

I want to be able to sleep without medications.

I don’t want to worry about manic episode which when over could plummet me into a depressive episode.

I don’t want others to constantly worry and question my behaviour – to doubt what I’m saying and refuse to listen because I’m just the ‘Bipolar Woman’.

But this is who I am.

These are the things I think about constantly.

This is the way that I have to live my life.

This is the only way for me to be stable.

I need to think things through. I need to be strong and determined and willing to pit my logical side against the creative or the emotional one. I need people to remind me why. I need to remind myself.

It isn’t easy.

But some days… days like today where it’s 5:00am and I have yet to close my eyes… I wish it was. I wish there was a simple fix. I wish I wasn’t like this. I wish I could focus on the kids - on the Birthday we're celebrating today. I wish I was just normal.

And yet, here I am. Still awake. Still wondering what it would be like if I just didn't have to deal with this every minute of every day. 

And then I know. I know I'm not alone. I know it is difficult at times. But I also know I've made it this far. I can make it one more day - everyday.

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Amid the Quiet and the Darkness

I should be asleep right now. Eyes closed, mouth open, snoring softly and dreaming deeply. I should wake up in the morning rested and energized, ready to face another day, fight another battle, and smile another smile. I should be able to close my eyes without my mind racing a million miles a minute – ideas and sparks of restless energy plaguing me as a tiredness sweeps into my brain, just out of my grasp.

As is typical, I laid down to rest tonight – electronics shut off, calming thoughts, quiet, and darkness surrounding me. But I did not fall asleep… could not fall asleep. My mind has been going non-stop for several days now, my heart racing constantly, my brain flipping around like a fish out of water. I’m exhausted but I’m wide awake.

It’s one symptom of bi-polar disorder and for me it is one of the earliest warning signs of a massive shift in mood occurring. It started with a mild depression and some anxiety following Christmas – my sleep becoming disturbed and then I began the upswing. I noticed it one night suddenly… the way that my brain changed complete direction. I couldn’t stop talking – I couldn’t stop thinking – and I felt good – really good. I suddenly felt like showing off – spending a little extra effort on my appearance, working a little harder, taking on a little more. I dove into some work on mental health – on my history, on recovery, on management and skills. I tackled each thing I did with a newfound energy and a vengeance. Most of all, I completely stopped sleeping at night – struggling to get an hour here and an hour there.

A couple of days passed. I saw my family physician who prescribed me something to help me to relax – something that had absolutely no effect on me whatsoever. Finally, I became agitated, the lack of sleep getting to me even though I had all of this energy and I knew it was time. If I didn’t get it managed quickly, it would blossom out of control... it was better to catch it early so that it didn't get too far out of my hands.

Taking a risk and facing a nervous anxiety I took myself to the emergency room – not an easy task when you are frustrated and tired, and you have an irrational fear of (being kept in) the hospital. Thankfully it was a good visit – speaking to the crisis worker and the ER doctor on call I was given a prescription for something to help me sleep – something I had been on in the past and that had usually worked well. Going home with a scheduled appointment with the psychiatrist I was almost excited to get to sleep and get back into a ‘normal’ routine. I should have known better.

That first night, I did sleep. It was broken and I awoke several times, but it was something more than I had experienced in several days. The next night I wasn’t so lucky.

It’s a tricky thing – a mood disorder. You want to live simply – take your meds and get better. You don’t want to have to think about whether you are too close to depression or too close to mania all of the time – but you do. You want to be able to fall asleep like everyone else… but you also have your best thoughts and ideas amid the quiet and the darkness – when the rest of the world is asleep.

I’m thankful for the doctors and nurses, the psychiatrists and the counselors, the crisis teams and all of those people who advocate for better mental health care and knowledge. I am thankful that they take me seriously now when I say I need to level out – when I can recognize the symptoms before they get too severe, and I am thankful that the good ones will work with you for a treatment plan that works for you.

Tonight I’m still struggling with Insomnia and I still worry about entering a full blown manic phase. I’ve seen the psychiatrist and we are upping a medication to hopefully get me to sleep before the insanity begins to set in. I wish I didn’t need meds for that – I wish I could sleep – I wish that sleep wasn’t a requirement so that I could act on all of my great ideas – I wish that my mind wasn’t built this way. But wishes aren’t reality.

And the reality is that sometimes life just sits you down on an out of control roller-coaster and you learn how to hang on tightly at all of the important hills and valleys – knowing that eventually it will slow down and you’ll be able to take control back again.

Until then – I’ll control what I can, pray for what is out of my hands, help end the stigma by talking about it, and rely on the support from friends, family, and professionals to help me get back on track.

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Let's Keep Talking

January 25^th, 2017 was the annual Bell Let’s Talk day sponsored by Bell Canada to promote mental health awareness and raise money for mental health initiatives across Canada. It is a great cause and an easy way to spread the word and share stories about mental health, different statistics, and social issues relating to the world of mental illness. The only problem was that after a bombardment of posts and messages and snippets across various sources of social media – today my feed was  almost silent. No more stories being told. No more statistics or awareness being spread.

But I still want to talk about it.

I don’t care about the hashtags or the re-tweets or the acknowledgement. I don’t care about the branding behind the initiative.

I care about sharing stories – telling mine and hearing others. I care about opening up communications within my social circles and beyond so that those currently suffering in silence, know that they aren’t alone.

I want to talk because today I am suffering.

I want to talk because today I was shrouded in a big black rain cloud – covered in depression, anxiety and panic attacks – and yet I forced the mask into place and I forced myself to carry on.

I want to talk because I know the feelings of loneliness and despair. I know the isolation and the twisted thinking that comes with it. I know the push and the pull – to both try to find help and yet shove anyone away who tries to help.

I know the anguished cries, the curled up ball on the bed, the prayers that feel unanswered. I know because today that was me.

I know the guilt over taking time for self-care and trying to do what you need to feel better. The tiredness of trying to keep up with everyone around you, feeling like a snail in a cheetah race. I know the looks you get when you say you had a nap - again. 

I know the confusion. I know the chaos. I know how it feels to be spinning in every direction while the world around you appears to walk in straight lines.

I know the anger and the sadness and the betrayal that work their way into your heart, that taint the way that you see your friends, your families, and your loved ones.

I know the insanity. The way that nothing makes sense, but it all makes sense. The way that you try to explain it and it sounds like gibberish – like back and forth, and up and down, and drama and despair and nonsensical nothingness.

I know the efforts to help – the hurt in their eyes as they wonder why. Why you feel this way when things are so good. Why you can’t figure things out. Why the usual coping strategies suddenly stop working. Why you are hurting again. Why nothing they can do can help you.

I know.

I want to talk about it because I know I’m not alone. I want to talk about it because I have a voice – because I know what it is like to feel the stigma and the self-condemnation due to a chemical imbalance. I know that it is important.

I want to talk about it... and I want to listen. I want you to know that you are not alone and you don't need to suffer in silence.

Today was a bad day.

I’m not afraid to talk about it. 

Because a bad day can look like any one of these: 

 

So Let's Keep Talking. 

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